Recent content by Blues88

I had a reply typed out but never sent it and the days march on.... I appreciate the information from everyone! I'm just a little bitter (something I'll own) about her experience with the neurologist in December. It's not worth it....things are what they are. She' using a Trilogy 100 vent at...

Hi, Unfortunately, my wife has been officially diagnosed with bulbar onset ALS by the Barnes/WashU neuromuscular clinic. Dr. Bucelli has been tremendous, and thanks to my wife's absurdly detailed symptoms journal and timeline, his team condensed all of her testing into a few weeks. No doubt...

Hi, would you mind unlocking the thread I started? Unfortunately, I feel I need to update on my wife's status and start sourcing advice. Thanks a lot.

Thank you so much for the clarification about the clinical findings. I am seeing Dr. Bucelli at Wash U. I appreciate the support. One of us will be sure to update with the findings (clinical etc.) from that appointment.

Hi, This is Blue's wife. Thank you all so much for your time and thought. I am wondering what is meant by "clinical exam" in this context. Is there any way to give more examples than the tingling/numbness one, or a link that I can be sent to in order to review? My original neurologist did...

Thanks a lot for asking....it's been a pretty strange trip. I'll have to ask her for more specifics (or just give her my log in) but basically: She had a lot of thumb and forearm pain starting starting two months after our daughter was born (starting late September 2018...Daughter was born mid...

Hi KarenNWendyn, Sorry to hijack this question here. I've read a few FAQs on the forum today as I scour the web to help my wife. Would you mind expanding on the clean EMG = no ALS statement and perhaps point me towards some supporting information for that? My wife has seen a neurologist and...