Recent content by BlueandGold

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    Hi everyone so sorry my dear sweet Vince passed away this morning. He is with God in the...

    Hi everyone so sorry my dear sweet Vince passed away this morning. He is with God in the heavenly choir. He had a beautiful singing voice before ALS came into our lives. I will miss him and my heart is sad but I know he is fully recovered because he has a new body now. I am comforted that he is...
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    Showers and Trilogy

    I am very close to 24/7 with my trilogy. For those of you who have reached that point, is it possible to shower with your mask on? Vince
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    Commode

    Jim, are you referring to a portable commode? I'm looking for a permanent fixture for my bathroom. Vince
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    Commode

    Does anyone know if it's possible to get a 20 or 21" commode? Can't find them anywhere. Vince
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    True Love

    Thank you for posting this. I pray that all surviving pals and CALS to take this to heart. Vince
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    Wheelchair cover for shower

    Anyone ever heard of wheelchair cover that would allow you drive in the shower and forget this transfer crap? Vince
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    Feeding tube scheduled but having second thoughts

    A song for you Kay https://m.youtube.com/watch?v=bTNLYeaL7No Vince
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    This disease is straight from hell

    Thank you all for your kind words. So supportive. But I can't even begin to tell you how my family's attitude towards me has changed. Being jerked around like a rag doll and the display of anger because my legs are gone and I can't help. I want it to be over. Vince
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    This disease is straight from hell

    First, it ravages your body from head to toe robbing you of any dignity you might have had. Then it builds a wall between you and your loved ones. The only feelings they have left is that they no longer have a life outside als and wonder "how long will this go on". The love dicipates and...
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    Another fall this morning

    Ended up pulling some muscles in my back. Hope it heals soon. Vince
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    Another fall this morning

    I do have a tall-boy toilet but legs are just weaker. Vince
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    Another fall this morning

    Happened when I was o the commode. Have one of the assist things that has bars on both sides. When I grabbed them and stood up, I immediately fell backwards and landed between the toilet and side wall. My chair was parked in front of the commode. If I had just fallen into my chair. Took my wife...
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    The Thrill is Gone

    Thank you for your honesty Scared. I ache all the way to my bones knowing I can't hold, hug, stroke, waltz, pick her up by her waist and spin her around. I only have my words now and those few times I get to stare into her eyes and reach her soul so she knows the depth of my love for her. The...
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    The Thrill is Gone

    Barbie thank you for your response. My wife is scared to death that even hugs might collapse a lung. I have gone downhill but I still have capabilities. I just have to accept this new part of my life als has taken from me. It's relentless and won't stop taking pieces of our lives until we draw...
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    The Thrill is Gone

    I totally understand. I am not angry at her at all. Just sad. Vince
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