Blubear
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  • could you send me your dads name so i can add it to the shirt i am wearing at the jump to survive
    Kari, HOW are you and WHERE are you? I have phone you twice and no reply...now I am worried...love you
    I was wrong.. NP001 will not be out until 2012 the Sr. researcher just emailed me --- We will probably start the phase 2 trial of the NP001 in April. I have not heard this target release date you mentioned. I don’t think this is correct. The phase 2 trial is 9 months long and then there would have to be a phase 3 trial before the FDA can approve it for market release.
    Oh thanks Kari for letting me know.. Yes the drug NPOO1 is in second phase trials and I was told it will be at "Walgreens" ( pharmacies) by end of July / Aug.. Your internal medicine doctor can administer. I will email my neurologist around March to see how that is progressing and keep you posted. I will look for the info on the person from Thailand... It was not the same drug but similar. I also read that the US government has set aside some Grant money to help expedite finding a cure for ALS.. Since very few people get ALS pharmaceutical companies are not investing in a cure, so the Government is going to help us out...:)
    Hey Kari, just realized that Barry only has Iris Marie's old address for the map. Could you send him the new one?
    Kari, haven't heard from you in a while and just checking to see that you and Michelle are ok. ((((hugs))))colleen
    Hi Kari, thanks for checking in. I am very sorry about Michelle, hope she can overcome soon! I am still here, no date has been able to be set yet. You have to put up with me for a little longer. LOL.
    Kari, I haven't seen your bubbly blue bear avitar on the forum lately and wanted you to know you are missed. How are your daughter and dad doing? Hopefully they aren't the reason for your absence. Sending hugs and blessings your way.
    How's everything going your way? Haven't heard from you in a while so just checking in.
    Me again. They're not doing a spinal tap, as my Doc feels the MRI should pick up any leakage and a tap could make it worse. Oh- I feel so good about getting that done, only hope that something shows up. I've just finished writing a play about our prison system, which is going to be produced in the spring. I'm starting the research on a new one- 12 women who have walked in Christ's steps during the past 2,000 years. It'll be 12 seperate monolgues. My pastor has asked me to run a lenten youth group to make banners for the 6 weeks, so I'm doing research for that as it's going to have to happen pretty fast. I'm also working on a novel, off and on over the past several years but now am doing more work on it. All these projects should keep me busy for the next 2 years so not much time to think or worry about loosing life. Have a good day- Karin
    Hi Kari- Happy belated birthday. How's your daughter and dad doing. Your a good hearted person Kari. You don't deserve all this. Not that anyone does- but it's been a long road for you. Don't forget to take time for yourself. Get your hair done or your nails if your into that, or buy a loverly night gown made of silk and lace. A friend suggested I called the MRI department to be put on the cancelation list and that also includes night MRI's. So I called on Wednesday and I went at 4:45 this morning. She said it will take 2 weeks for my doc to get the report. I'm so glad to finally have it done. I think it should have been the first thing that should have done... Walking is getting really hard over the past month. behind my knees the skin is tightening and I'm dragging my feet more- oh well. I stay busy. Is your daughter responding to the detox? Have you been able to find out how she got the metal poisoning?
    Hugs and prayers Karin
    it is unreal , how is she doing now ? and your dad have you got to see him ... happy new year
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