Recent content by blrw41

Clothing sometimes bothers me. I need everything loose now and even when it's cold I can't hardly bear to have a jacket on and especially nothing snug on my shoulders or touching my neck. Bed covers are irritating and I usually don't like them on my feet.

I've been told there isn't a neuromuscular specialist, I would have to go out of state and have no way to do that. I have been taking baclofen for almost a month. Seems to help a little with the leg spasms. I take ibuprofen for pain, helps my back some but not my legs much. My upper arms hurt...

Is it usual in MND to hurt all the time? I almost always have pain all over but especially deep ache in legs and always have the feeling like I'm on the verge of coming down with something or flu-like feeling. And have spells of extreme sleepiness.

I was sent to a neurosurgical clinic and had MRI of neck again but with flexion and contast and one of thoracic spine. By this time I had no balance and had to use a cane, left hand and arm weaker. Back between shoulder blades very painful. Had ACDF surgery on Aug 27. Went to rehab hospital for...

I will start at the beginning because I do not know what is relevant and what isn't. I am now 47 years old. Separated since April after 20 years with a verbally abusive man. Struggling to support myself and 2 teenagers. I was always awkward and uncoordinated. A big clumsy girl. But basically...