Recent content by Blessed1

Thanks to all for the recommendations, will tell my wife about the suggestions and see what she would like to do.

My wife has started having severe muscle cramps in her jaws. It has gotten so bad she can tolerate chewing only for a short period of time. So right now for the past couple of weeks she has been drinking her meals, cup of soups and breakfast milk shakes. She will be going to the ALS clinic...

Thank you so so so much for your help. I have already made your recommended changes on her CPAP machine. If her neurologist doesn't take care of it this week, we will get her PCP to take care if next week. As far as our financial situation, right now her out of pocket and deductible have been...

Hello, Laurie Thanks for your response. About 4 years ago after she had a surgery and while monitoring in the hospital they discovered her oxygen would drop off when she went to sleep. They did a sleep study and diagnosed her as having obstructive sleep apnea. She has been on a CPAP every...

- My wife is scheduled to be seen @ an ALS Clinic, for a second opinion 3 day workup, but the appointment is over a month away. The doctors are undecided if she has ALS or PLS - Her not very involved local neurologist scheduled a pulmonology test for her (2 months ago), and she finally had...

If you don't mind me asking... Did you have to return for results because you didn't get to see Dr. Appel or for some other reason. Don't want to put my wife through extra trips, if just waiting to see Dr. Appel would alleviate that.

Thank you all for taking the time to reply. You ALL have been very helpful. I really do appreciate it. I will update this thread as I have news, and possibly more questions.

Thank you! I called them today and they didn't have any record of my wife, her doctor must have sent the referral to wrong place or something. If I hadn't called we would just still be waiting. So we are seeing her regular doctor tomorrow and will hopefully get this referral process going...

Well we heard from my wife's doctor on the 20th of last month and they are referring her to be seen by Dr. Appel @ Methodist. So far haven't heard anything back from Methodist hospital. How long does it take to get an appointment there? --- Nevermind.... from searching the forums... it...

Ableware Universal Built-Up Handle for silverware - If you search on amazon it should come up.. Helps my wife out alot when she is eating, she has problems gripping small things. This is similar to the large handled silverware that was already recommended, but cheaper. Came in a pack of 4...

Thank you, I couldn't find anything about the clinic in Lafayette. I have let my wife's doctors office know about Dr. Appel @ Methodist in Houston. But told the nurse to get her where ever he thinks she would get the best care and diagnosis, we don't care how far we have to drive. My wife's...

Thanks for the information.... We will take that into consideration and let her doctor know.

Thanks for your reply. We don't need a specific diagnosis for insurance purposes. Just what we are looking for is clarity. we just need an expert who can if possible say what we are dealing with, so we can plan and equip ourselves for the future. What I am hoping and praying for is that an...

I am new here.... if this should have been posted somewhere else, please move it and let me know.

I have psoriatic arthritis, at times my feet, hands and at some point about any other joint in my body hurts. Sometimes I have swelling other times just redness or pain at the joints. The pain issues do sound like my experience with arthritis. It doesn't show up in blood work like RA does...