Recent content by Blackeyes

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    Larrys passing

    Last night under the drs care larry was given his final wish and is no longer suffering from ALS. He died on his terms surrounded by family. i find I am more angry now then I was. I had our OT contact everyone who lent us the beds and power chair. And donating everything else. I want ALS out of...
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    Assisted Suicide

    Because Larry has ALS they have waved the 2 drs gave their immediate approval and the 10 days period was waved. They are coming to our house Wednesday night. Our children will be there and a nurse who is also a very close friend. He is at peace with his decision and even has some colour in his...
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    Assisted Suicide

    Thank you all for the support. It means a lot. We’ve only been dealing with this for less then 2 years yet some of you have been going thru this for so much longer and I can’t believe how strong you are. Today I cried. All day long. I painted my cupboards for no reason other then I needed to do...
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    Assisted Suicide

    Thank you for what you said. I’m really sorry you’re familiar with this topic. I was always on the fence about suicide. This disease has taught me a lot about ppl. Our health system and how much help there is for some and not others. It’s also taught me that some of the equipment we are using...
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    Assisted Suicide

    Thank you Laurie. Your right I just needed to vent. I also don’t know what to expect from ppl who don’t have ALS or have seen his progression because of Covid restrictions. I don’t want anyone to ever believe he was a coward or a cop out. He’s a strong and proud man who doesn’t want to spend...
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    Assisted Suicide

    When my husband was diagnosed he told me that when there were things he couldn’t do and he had to rely on his breathing machine and oxygen he wanted my support for his right to chose when he was done. He’s been bedridden for weeks now and everything on his list has been checked off. Now he...
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    Very worried

    Concentrate on your friend. He after all does have it. He needs your support right now not you mimicking jus symptoms. If you can’t concentrate on what your friends telling you about himself and instead without making his symptoms yours you are not doing him any favours. The last thing anyone...
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    Bulbar symptoms?

    3 negative emgs congrats you don’t have ALS. Take care but I don’t think this is the forum for you. Once your dr actually gives you a diagnoses I’m sure you’ll find the proper forum to be at. good luck
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    Unwell and concerned

    i suggest you stop doing research and listen to your drs. It sounds like the more your reading the more your developing symptoms. And your symptoms are all over the place. That is NOT how ALS begins. But your mind can create many different symptoms and your body can manifest them almost...
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    Memory problems

    Can someone tell me a bit about als and how it may effect the mind. Lately I’ve noticed larry doesn’t seem to always be processing what I’m saying. Or we are watching tv and I’ll go out of the room and come back and he’s laughing and I said what was said and he stops and looks at me and says I...
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    Definition question

    I realized tonight I’m not anywhere near prepared or have enough knowledge for what’s happening. I put my husband to bed and somehow he ended in the wrong position and started gasping for air. I was able to sit him up got his oxygen on gave him a shot of morphine and tried to get him to relax. I...
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    Definition question

    My husband had a chest X-ray today because they saw a shadow on the lung last week. When he was explaining it to us tonight he said that the lower part of the lungs have collapsed. I’ve never heard that happening except on tv and it always meant a balloon and surgery. So I’m not understanding...
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    Feeding tube decision...

    Our story is very similar. Larry was against it. He won’t agree to anything invasive and believed the tube was just that. But Many people can live months even years with the tube and still be able to do many things and have an enjoyable life. There is no guidelines or timetables. It’s not a...
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    I'm scared

    it’s NOT ALS.
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    Tolieting Issues NEED help!

    When I first started using the lift it seemed to take forever. But now I can have it on or off of my pals in record time. I also sing while I’m doing it. Only time anyone will ever stick around. :). What I like is it’s safe and he isn’t going to get hurt. And u don’t have to go as high as it...
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