Sorry for not posting back for you Toto, I dont get on the forums much. Every Day is an adventure as a caregiver, and Our Dad is a Character! As you know! Yes I live in Texas, but right now I am absolutely where I belong and want to be, and that is with the man that sacrificed for me for so many...
My husband is bill and when dad was diagnosed aug 2010 He went looking for information and resources for my dad and I and found this forum, I think he may have found it before dad did. I am very unfamiliar with communicating here still learning
Hi Kim, dad is doing very well. His trachea is healing very well and last night he slept for 7 hours straight! He looks better every day, the docs say he is doing great. We have all started our training and are looking forward to getting home! Dad says he is not quite ready yet, I think he is...
Hi Kim, I am Beach Bums daughter, he asked me to contact you. We want you know that Dad's surgery today went Great. He is in ICU now doing very well, gave us lots of thumbs up and even a few smiles! Its been a very long day but will see him again tomorrow morning, will keep you updated on his...
Raul
I just wanted to extend my deepest sympathies, I read your post on the day and I cried and cried for your loss. I couldnt even type. My Dad is 67 and was diagnosed in August as well. I was so shocked that your Dad passed so quickly and it really hit home for me. I lost my mother just...
Just read over the post here and it looks like you are getting some good advice, I will add my two cents based on our family’s experience. I would contact the PVA for advice. The VA reps can be helpful and I do believe they will work in your best interest . I say this as 23 year retiree with...
Our experience was:
contact them asap!
VA national 1-800-827-1000,
PVA National Headquarters: Contact Us | Paralyzed Veterans of America
800-424-8200
ALSA: Welcome - The ALS Association
Get intouch with your Local Chapter ASAP they have lots of good info for you
We were incredibly lucky...
Just want to Thank Everyone that took the time to reply. My husband Bill and I are using the same "user name" Im hoping that is ok... and I probably should have announced myself at the beginning of this Post, but I had so little time, and so many other things on my mind I just wanted to get the...
Hi Everyone,
My Dad was diagnosed in Aug 2010 and we are headed to the ALS Clinic this week. I am wracking my brain ... I feel like here is our BIG opportunity to ASK all the questions ... to get ALL the answers... our big chance to Be On Stage... THIS IS IT!
Only im having brain freeze...
My wife will be coming home tomorrow; she has accomplished a lot and hopefully has gotten us off on the right foot. She and her father have spent a lot of time with his lawyer. I know others her have said that this could wait but at least in our case we felt it was important get started. With...
I spent much of Labor day going through the forums and picked up some really good information. I thought that I would start to post things that Steph, my wife, and I are doing in hopes of it becoming worth while for others down the road. Since I am new to the forum please let me know if there...
Ann,
Thank you for the advice, unfortunately we have gone through a bit of a dress rehearsal for this but on a positive note we have learned a lot about end of life care. My reading tells me that my Father-in-law’s disease will be more difficult and where my wife made extended trips to see...
Hello every one, this is my first post but I’m sure it won’t be the last. I just returned from my mother-in-law’s funeral. She was a beautiful and caring women who died after a long bout with Lupus.
About two weeks ago, in the midst of this, my Father-in-law was diagnosed with ALS. He has...