Recent content by Bigshawn44

I was reading a small study that was posted in ALS Therapy Institute forum where Electronic Stimulation Therapy was used for stimulations to the nerves that have died or are dying and slowing atrophy. From what I read that with routine stimulation therapy to the atrophying muscle was able to...

That so far has been the same for me as well.

Thanks Bill It definitely has been a rough adjustment and I’m sure it will get better. Everything is just happening too fast at the moment to adjust.

Thank you. I’m going to try and do better.

Thanks for clarification. I’m not at point where I need feeding tube but have issues swallowing. Just have to drink more fluids while eating and have increased saliva bad after eating.

Thank you What do u mean by maintaining weight will help with progression? Ever since I started having swallowing issues I lost all appetite and have to remember to eat. I have a slow decline in weight but I think it’s from losing muscle so much.

Thanks for the quick response. I am not making money when I say I’m working. I’m actually helping family and trying to keep my mind busy trying to not face the reality of what I’m going through. I’ve worked since I was 12 and it’s hard to just sit and not do much. Is there any kind of funding or...

Thanks for the replies. Within the last 2 weeks the progess as kept going. Now I’m unstable going down steps as my legs shake. I started the riluzole 2 days ago and waiting for radicava approval from insurance. I have been severely discouraged that I have lost so much strength in such a short...

I had been diagnosed with PMA in December of 2019 and April 3 2020 just got diagnosed with ALS. I’m reaching out for help on how to deal with sudden loss of strength and endurance. After dealing with PMA I used to have good days and bad with strength. But recently lost a lot of strength and I...

Well I was diagnosed in December as PMA and April 2 2020 I was diagnosed with ALS. I am being scheduled to start radicava and riluzole at the same time.

Not really sure how to navigate this site but pm me.

Thanks everyone for taking the time to help me with my concerns. I really appreciate it.

So has anyone had a significant change in strength. I woke up 2 days ago with a lot more leg and body fatigue. To the point of not having much strength to step down on steps and straining leg muscles during the day. My legs seam to be twitching and jumping more than normal. I thought by resting...