Recent content by bhg

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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Good to hear from you Ed, I don't post often, but follow your migrations south to Tucson each year. I'm a history buff. Just south of Tucson is where the first civilian settlers started their trek to Spanish California and founded San Jose, the first pueblo in 1776. In my younger days enjoyed...
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    51 day cruise 2022 to South America and Antarctica

    We did the reverse, from Chile to Argentina including the Falklands and Uruguay, but only two weeks. You are seeing so much more. So glad you are doing this.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Xmas hit me hard this year. Major progression in several areas. Bummer.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    We had a nice Thxgiving, just the two of us. Since I’m now spoon fed, hubby cooked a turkey meatloaf. Went well with the bourbon yams, stovetop stuffing, etc., all easy to cook and for me to eat.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Checking in. Still here.
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    Adventures in Yellowstone: Fall 2022

    I too really enjoy your posts, Steve. Thanks.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Al, good to hear things are working out. We had a short heat wave here that left me weaker. We don’t have air conditioning. Several large trees shade our house which works great most days but not when it is over 100.
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    What now?

    Sorry. My eyes flickered after putting a like on Tillie's post causing the other inappropritate one to come up. Having problems with eyes today.
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    Riluzole Information

    To me the article Nikkie posted is a perfect example. It lumps all together: “ALS patients.” Why not at least distinquish between the obvious differences: UMNd & LMNd & Classic ALS. Should be easy to do and make the study more meaningful. Another thing to add to ‘the advances in care adding...
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    V's Sweet Ralph

    V, I’m so sorry. Like Kevin, I too followed your story on the CALS thread.
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    Riluzole Information

    I’m curious. How can they tell that it adds time. I’m 9 yrs since onset without taking it Also, how do they track it? Seems like all those clinics would be a good source, but was told they don’t provide info.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Checking in. I too am interested in how things go, Al.
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Just had my ALS Clinic video chat. All I wanted was to see the Neuro to keep him up to date and Pulmonary guy re mask issues. Lasted 15 minutes. Beats the over-4-hours in pre-COVID days, which included hiring paratransit for $250 just to get us there. Kim, that’s tough. Yes, start looking...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    By “travel” I mean by tv or computer. Have been house bound for several years now. Watching the Tour de France on tv/computer is like taking a road trip; I almost feel like I’m right there. Great fun. We did a lot of traveling before the ALS. Years ago, we happened to be in Paris when tour...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    gnat, so glad you took the trip. The only time I “travel” now is each July watching the Tour de France, 3 week bike race. Takes me all over France. This year it started in Denmark and today we are in Switzerland.
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