Recent content by Bfloyd

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    Best of luck And love to you..

    Best of luck And love to you..
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    Finally a dianosis

    Thank you, I am thankful I have a long road ahead of me. I think of you all often and am grateful for your clarity in reeling me in. I'm hoping some of my atophy and weakness will improve with time. Take care To you all.
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    Finally a dianosis

    Some may remember I had frantically posted a few times. I think we finally nailed it and I wanted to say thank you for the many support and responses. I had a MRI due to some chronic neck pain which I've had a chronic pain issue for years especially after back surgery. My symptoms as we went...
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    Don't blame u if you don't respond.

    Thank you, test results were not in Friday afternoon. Low antibodies and IgG was lowest. They never would give me dianosis of BFS, people seem to be moving pretty quick at moment. I guess when they see the atrophy finally all over (been called cachxia to me) they are trying to stop it. I even...
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    Don't blame u if you don't respond.

    I actually have blood work to check for MG Tomorrow and a brain MRI next week I'm assuming looking for lesions. They have also called in to see how long a muscle biopsy will take. It's a little more sever than they thought but I knew it was unusual as soon as it hit me His words were cachxia...
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    Don't blame u if you don't respond.

    Thanks for responding, my Rhumey is 3.5 hrs from here and after finding low IgG he sent me to local immunologist. Rhumatologist said i had unexplained chacxia and sent me on my way Immunoligist has found spot protein and I'm getting more blood drawn Oct 30. After dentist I called family Dr and...
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    Don't blame u if you don't respond.

    Good morning , Last time I was here I was so angry at the Drs I was rude. And I apologize for that. I can't figure out if this is my third headed into my 4th winter with an issue that's progressed pretty quick. I have stayed off internet since my meltdown and actually thought I was going...
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    Are the nuros iggnorate or am I ...

    FYI , I'm not sure you read my post from long ago but even this last one I think I indicated I don't have ALS after a member here made it clear about the weakness I have BFS but with more symptoms than most have.. I am pretty sure the 3 Drs I've been bounced around to know what there talking...
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    I really enjoyed your kindness and firmness with me when I first came on here and now I see...

    I really enjoyed your kindness and firmness with me when I first came on here and now I see you've passed. I can see you were well loved and missed. You really were patient and helpful
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    No it's pretty clear the outline of ALS.. I'm assuming it's like weakness like I had with drop...

    No it's pretty clear the outline of ALS.. I'm assuming it's like weakness like I had with drop foot.. Mine is just extra heavy tired limbs that don't like exercise. They cannot find reason for atrophy but I think the experts here on ALS know more than nuros on their diesease. Have you looked at...
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    For message thx, yes clearly see the dents and shape change, I lost both fat pads , toes went...

    For message thx, yes clearly see the dents and shape change, I lost both fat pads , toes went skinny , and first time I've ever been able to put hands around ankle. It's caused tarsal like tunnel symptoms , which I've never had since BFS. Since they can't give me a proper BFS diagnosis I have...
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    Hi there , found my way back to your name.. I'll be in touch... Many lost BFSers out there who...

    Hi there , found my way back to your name.. I'll be in touch... Many lost BFSers out there who can't get any relief or hardly any education on BFS..
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    Are the nuros iggnorate or am I ...

    Actually he never responded the first time I asked a few questions months ago , some very nice people did .. And awnsered my questions and told me to let me know how things turned out. I have seen people post hundreds of time wasting post for months on end and that's not been my case. As a...
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    Are the nuros iggnorate or am I ...

    I'm just curious if my last reply will be posted?
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    Thank you , I was looking for her name , I knew it was somewhere! I'm not sure who has to...

    Thank you , I was looking for her name , I knew it was somewhere! I'm not sure who has to approve my message but I think Write deserves to hear what I have to say. Thanks for providing helpful info
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