Recent content by Bexlil

A few weeks ago my husband died, just days before our 23rd wedding anniversary. I still can't believe it. I am so sad, so angry. I'm 51 and a widow. My kids don't have a father. I don't know what our lives will be like without him. He was diagnosed with progressive bulbar palsy in December...

You have been posting since April 2016, and keep asking for reassurance. You even said you are going off of this site because it's not good for your mental health. Please stop asking people to reassure you. We have real problems to deal with. Go to a doctor. Find out what is wrong. You do not...

My husband also has bulbar ALS, and has been unable to find a comfortable neck brace. The ALS clinic wrote us a referral so that he could have his measurements taken for a more comfortable fit. Definitely have your husband fitted. Good luck in your search.

Here in Nevada, I called hospice when I realized my husband was reaching a point where he needed more care than I could give, even with my being on FML. The next day a nurse came out to evaluate him, and she sent her recommendation to his ALS doctor. Less than a week later, he was all set up...

I am so sorry. My husband was also diagnosed in December 2015. By the time he was diagnosed he had lost the ability to speak and had to retire from teaching. He had, and still has, a lot of anger. It has been extremely hard to accept the fact that at 53 years old his life was going to end. We...

My husband was diagnosed 13 months ago with progressive bulbar palsy, a form of ALS. In the last two months is has quickly deteriorated. He is miserable not having any independence. He is on a feeding tube and uses a walker. I see a daily decline. My question is, what can I give him to help with...

Thank you all so very much. So difficult to deal with all of this. Still unbelievable to me.

Thank you all so much. We thought we should protect them a little longer, but I don't want them to find out from someone or somewhere else. I really don't want to give the timeline, especially since I still am in shock and maybe denial. So, not sure about that part?

We have two children, aged 16 and 13. How do we tell them their parent has been diagnosed with ALS?

How do you tell teenagers that a parent has ALS without terrifying them?

And I don't know how to pm.

How does it work?