yes, exactly.. mom wants the day to day medical supervision and support but not the "prepare yourself for death." I think hospice and health care overall has a long way to go in offering options and useful help. Heard Obama is going to propose some sort of tax credit for elder care in his state of the union address... The producer side of me wants to turn this all into a documentary, but the daughter side of me is not so sure... We'll see what the next week brings.
Hi, Beth, I think about you two as well and am sending such good thoughts. I still hope I can help you out some day. I am packing up a few more things to head back up north to be with mom. I think I am still in such denial. Not sure where to turn next, but my analytical and my emotional mind is a bit afraid of hospice...when the first words out of the Hospice Director's mouth are about using morphine... Mom just wants each day to be a good day and she is coming to terms with there no treatments other than what she is doing, but she still talks about fighting and going to other clinics -- so it is very hard to know what and when is the right time. Pulmonologist did not even take her FVC -- she is on BiPAP 23 hours a day, but she is still walking and has use of hands .... Sorry to go on, just not sure I want to post to entire forum yet.