Recent content by Bestfriends14

  1. Bestfriends14

    Worried

    You're adding things in response to each answer, which tells me your symptoms appear perceived rather than realistic. As such, continuing to ask questions of terminally Ill people is fruitless and intrusive. Please speak to someone about your fears; there's nothing on this forum that pertains...
  2. Bestfriends14

    ENMG clear but...

    I'm not sure what you mean by "all the signs of ALS" since you have had a clean EMG, do not describe any ALS symptoms (there's no such thing as spinal ALS. ALS is a brain disease, not a bone disease), and have been cleared by a neurologist. Perhaps further discussions with your neurologist will...
  3. Bestfriends14

    Worried

    Nope, nothing you've described has anything to do with ALS. Enjoy your healthy life. Thank goodness you do not need to be here. Best of luck to you.
  4. Bestfriends14

    Hi there .. This is my first post.

    Cheryl, you've kindly been asked to post back AFTER you see a neuro, not after you've thought about seeing a neuro. There are people here that type with their eyes, use a prop pillow to keep their head up, and caregivers that care for their loved ones day and night flushing feeding tubes...
  5. Bestfriends14

    Hi there .. This is my first post.

    For my husband, the EMG picked up right leg deterioration and something "off" in his left forearm on May 30, 2017, his diagnosis date. He started showing symptoms of drop foot on his right side around the beginning of 2019 and inability to do zippers and grasp small objects with his left hand...
  6. Bestfriends14

    Can't get rid of phlegm

    Ted, nice to hear from you. I often think of how you are doing and glad to hear you are doing well despite the feeding tube surgery and, of course, this damn disease. Denis, he cannot cough it up fully but we try our best with the mucinex and fluids. Where we are at for the winter (Palm...
  7. Bestfriends14

    My beloved father ....

    I'm so very sorry for your loss. Hugs to you and your family.
  8. Bestfriends14

    Can't get rid of phlegm

    Yes, you are right, dairy us a no no for phlegm. However, my husband loves cream with coffee and refuses to give it up. I think that small amount is contributing to the production for sure. If anyone has suggestions for creamer alternatives,we could try those.
  9. Bestfriends14

    Can't get rid of phlegm

    I'm only being humourous. It's the only way that my hubby and I can find tolerance on the day to day surprises of this disease. Jim, thank you for your suggestion. I will try it because the other things we've tried have helped, but not completely. As such, there's still a lot of phlegmy coughing...
  10. Bestfriends14

    Can't get rid of phlegm

    Lol!! I just may wear such an outfit. I was wondering, though, if I don't do that smacks correctly, then I'm just hitting a poor ALS patient, thus adding on to the strife he's already experiencing!
  11. Bestfriends14

    Can't get rid of phlegm

    Thanks so much everyone. We are in PD until April 1, but if need be, it's a short flight to get home and get a cough assist. We are waiting on the ALS clinic to call us today for any other suggestions they may have. Lemon trees abound here so lemon tea, water, lemonade will be no problem to get...
  12. Bestfriends14

    Can't get rid of phlegm

    That's awesome, Laurie. Thank you so much. He's not on Bipap yet because he's just in the high 70s for breathing and high 50s for sniff test (?). We are in Palm Desert and go home in 7 weeks. If it comes to it, I can send him home ahead of me and drive back on my own. To start, I'll start...
  13. Bestfriends14

    Can't get rid of phlegm

    Hi all, We are in the U.S. currently, so going into a walk in clinic us not an option. Wayne has a ton of phlegm that is not clearing. He coughs and coughs, but it's been about 3 weeks now. I've given him mucinex and pineapple juice to no avail. His respirologist back home was forward...
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