Recent content by berniec74

Penny...I wish I could use the condom cath! especially since I too like to drink beer :)

I have two female urinals...one is the Freshette...still practicing! :0 And yes, I know to use pads. I am unable to stand at all and my left arm is extremely weak so it takes me getting to the edge of my power chair and/or manipulating the recliner to get it in a "doable" position. Guess I...

Do you have an actual ALS Association nearby? I know you mentioned MDA. There loan closet should or might offer a chair. I am in St. Louis and have a chair on loan. I just got fitted for my own chair via Medicare but I too didn't know I was entitled to one so don't feel bad. I have a an ALS...

Thanks for the feedback! My girlfriends are ok to help this weekend. I am actually more concerned about regular days.

Does anyone else who has now lost the ability to use the bathroom alone have any words of wisdom? I live with my brother and sister-in-law and have a part-time caregiver but this issue is literally making me crazy. I worry constantly about when I have to go and who is around...people try to...

How do you get out of your own head? I was diagnosed a year ago and no longer walk...now I'm losing my left arm strength and assume my right will be going soon. For the most part I have been positive but I can't seem to shake the anxiety/fear/frustration etc. I am 50 and single and have moved...

I am 50 years old and was diagnosed last December. Yes, you can have ALS without it being bulbar. I don't want to scare you but I started with foot drop and limping and had no idea what was going on...I was having some back problems so I thought it was all related. Unfortunately it wasn't and...

in all honesty, don't jump the gun...just go get a physical/check-up and tell the my your exact symptoms...ALS is not probably what is happening...but get your peace of mind...it could be something so minor...good luck and god bless

you are both lucky to have each other...its terrifying as a PALS who isn't married...don't get me wrong i have a wonderful support system in family and friends but what you both have...as hard as it is....is beautiful....God bless you both and enjoy your time together. Your most enjoyable day...

i'm a person with ALS who is currently renting and preparing to move - my biggest nemesis - the BATHROOM! he will thank you...it's horrible to have anxiety just to go to the bathroom or get in the shower - even with all the equipment I have...god bless you! you are absolutely doing the right...

get multiple opinions...i actually had spinal fusion surgery for a very specific issue in my lower back...i never equated the left leg fatigue and slight atrophyt to anything more than my back was messed up...post-op visits to my orthopedic were the red flags...leg never got better....after 3...

Greg, I haven't experienced any in my stomach area...my main weakness right now is my lower body mostly the left leg so I feel them in my legs. One of things I recommend (and I'm a big offender!) is don't let yourself get too anxious or fearful...just call the doc, come on here but the mind is...

Carlos...I agree that you may be jumping to conclusions. Reading and evaluating based on research on the internet is not good! Trust me, I did it myself. I think you should go and see your doctor in person and get a thorough check-up if it makes you feel better. Also, if it makes you feel...

Happy New Year Judy...I am new to this and newly diagnosed. At first I felt like I couldn't say Happy New Year to anyone...then I thought well 2012 was the shitty year...2013 is my acceptance and understanding of this crazy illness. God bless!

I have had my normal appetite and yearning for crappy food like McDonald's, mexican, greek, etc. However, in my own home I can still get around but I get lazy and end up eating less than I normally would...so don't over think it...try to eat as you did prior and maybe bulk up with things you...