Hi! Well, they've tried Botox and some other injectables/pills (?) botox for sure though. It's sort of helpful. I guess it isn't constant suctioning, but frequent enough that my dad could never pull over and help her w it and still make the trip in a reasonable amt of time. Good to know your...
Thank you! I'm going to look into the van rental more seriously. I'm wondering if they even come w a commode, which would save tons of time by not having locate restrooms on the way or take my mom in and out of the car unnecessarily :)
Hi everyone. This is a long post but I am dire need of advice and any compassionate guidance would be so appreciated. I'm new here but my mom has had Bulbar Onset ALS for the past 3 years. At her current stage of her disease, her entire upper body is essentially no longer functional (she still...
Hi Nikki. My mom also has the bulbar onset and it started in her tongue/mouth. Your mom's progression sounds exactly like my mom's. I am so sorry she feels this way but it is incredible of you to support her wishes. My mom also cannot speak or write; her entire upper body is essentially...