Recent content by BellaBells

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    Update report

    Thank you do you think the reinnervation is a reason for concern should he get an emg in another 6 months since reinnervation can be associated with mnd. He is doing personal pt to try and strengthen the muscles that feel weak the neuro said they never encountered someone who says there body...
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    Update report

    Thank you do you think the reinnervation is a reason for concern should I get an emg in another 6 months or is there no point
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    Update report

    Umm quick question he wanted me to ask not to bother anyone since we just had our follow up with the neuro. As we said before everything was clean except for a large muscle group in the leg that was damaged but it reinervated itself. They did the normal strength test plus babinski clonus and...
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    Update report

    Hello everyone Bella Hill here I'm not certain if this is the right place to post but I have an update. First I want to thank everyone who assisted us through this hard time and I will not be posting here again. We had the third emg as requested by Parkland's neurologist and everything turned...
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    Sorry but I have a update and a concern

    Hello I'm sorry to bother you I'm not sure if you remember me my husband thought he had Als but his emg only showed signs of myopathy. I have let the thought go but yesterday we went to Parkland for a clinical exam with a neuro and we suspected that after seeing the emg they would do a muscle...
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    Thank you all

    He was just asking. Thank you for replying back you all have been a great help I am ready to let this go and I believe he finally is too
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    Thank you all

    Thank you so much does a muscle biopsy mean definitely no als
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    Thank you all

    I want to say thank you to everyone for all of your assistance and comments. I'm sorry if we bothered any of you I understand that you are dealing with this illness as best as you all can and I admire your strength. If anyone cared for the update we saw our final neurologist and he said no Als...
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    My husband fears ALS

    permalinkBellaBells He went to a neurologist today he didnt do an emg he felt it wasn't neccessary. He did a clinical exam and said my husband seems stronger than him even though he explained how weak his neck and legs are. He did say he sees a lot of symptoms of parkison's disease but not a...
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    He went to a neurologist today he didnt di an emg je felt it wasn't neccessary. He did a...

    He went to a neurologist today he didnt di an emg je felt it wasn't neccessary. He did a clinical exam and said my husband seems stronger than him even though he explained how weak his neck and legs are. He did say he sees a lot of symptoms of parkison's disease but not a certain diagnosis just...
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    My husband believes he has Als

    I have tried that too we have been to over 10 hospitals even out of the dallas area. They feel no sympathy because his regular vitals are normal I go to every one with him so I can tell them what I notice verses what he says he feels they offer motrin and extra strength Tylenol which does...
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    My husband believes he has Als

    You are correct there are a lot of clinics and hospitals with neurologist unfortunately most do not accept our Medicaid and they claim that I can not pay cash on his behalf because it's against the law to accept cash payment for someone with Medicaid. Believe me I have spent hours on end...
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    My husband believes he has Als

    Yes the doctor has said the best thing to do is see a neurologist but the appointment is not until December we have been waiting for a couple of months now. His breathing is getting worse though and his neck is so soft he says he fears it might drop or fall off. The doctor has prescribed two...
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    My husband believes he has Als

    My husband's breathing has gotten severely bad he is steady gaining weight at 227. We took your advise He had a breathing test oxygen 98 and the pulometer function test was 35 which is really bad. His neck feels a lot softer and he feels weaker but he can still lay on his back no problem
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    My husband believes he has Als

    No he isn't overweight the thing is when his vitals are checked they appear normal. But his breathing his loud through his nose and when he sleeps he breathes through his mouth. https://www.alsforums.com/forum/general-discussion-about-als-mnd/9423-consultation-hopkins.html
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