Recent content by BeckyUK

Al, Thanks for your message on the forum but I will still be leaving. I just find some of the attitudes a bit hard to deal with - not because I disagree but because they just seem to belittle those who don't agree with them. I accept that I'm not a person who posts a lot or contributes as much...

Or are you one who'd rather sit on the sidelines and snipe at the ones who are actually trying to get information across to these folks in their time of fear and need? Time to put your money where your mouth is. What words of hope, knowledge, and wisdom do you have for this poster? Show us...

I'm starting to wonder why this forum has a section called 'Do I have ALS?' if all people do is give posters asking questions a hard time. The original poster is obviously ill and concerned and wants the benefit of people's opinions, so why treat him as if he is an idiot? Just because he might...

It sounds like a repetitive strain injury. Could easily be caused by playing the guitar or using a keyboard and holding your forearm at slightly the wrong angle. It is pretty painful and causes all the symptoms you describe.

I'm sure we all suffer this sometimes. Often in the same situation my husband and I will look at each other and he'll give me a little wink, but I still see the tears welling up in his eyes as he knows that he'll be pushing me around soon. The main problem is that we feel so cowardly compared...

I startle easily but last night the strangest thing happened. I always go to bed early (as I'm always shattered) and my husband came to bed an hour or two after me. Just as he was getting into bed he touched my leg and I sat bolt upright in bed, arms flailing, heart pounding. The shock was...

It is a really frightening time but I am sure that the EMG will help diagnose what you are dealing with. Let us know how you are getting on. Take care xx

My neuro did this with me but I have no idea what he was looking for. He never explains anything to me! I couldn't do it quickly, my foot also seemed to stall and behave like it wasn't attached to my leg!

I post rarely on the forums but your message moved me to tears. You are exceptionally brave for so many reasons; not only for making the decision but also for sharing your experience with us. I can relate to your situation; the worries you are facing and how you want to ease things for your...

I attended a recent lecture by an ALS specialist in the UK and this problem was mentioned. To be honest it was the first time I had heard about it and I agree that this is rarely discussed. She explained that in the early stages of FTD impulse control becomes weaker and that the patient needs...

Joel's honesty and integrity has been an inspiration to us all and he will be greatly missed.

Hi everyone, its been a couple of months so just thought I would update on my (very) slow diagnostic process... I had my EMG test around 6 weeks ago and heard nothing back from it. It turned out that my neuro had gone on holiday so I didn't get any results through for a month. When I did I was...

Hi, Yes, I'm at the Hallamshire but with Dr McDermott (one of Prof Shaw's team). My full diagnosis is taking an age - 2 and a half years so far but the end is in sight as I had my EMG tests last week. Hope things are OK for you at the mo (as well as they can be in this situation!) Take care...

Most UK life insurance policies have a 'terminal illness' clause but the payout will normally only be made if the insurance company medical experts determine that you have a year or less to live. Unfortunately they are not known for paying out as will often say that they feel you have longer.

I've had responses from the, very nice, 'is there anything they can do?' to the expected 'what's that?'. The worst one was telling a woman who worked for me what I had and her response being 'it couldn't happen to a nicer person'. She then explained that she meant that she felt that I had the...