Recent content by Beckylou

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    What are you reading? (In memory of Allen (trfogey)

    My father, sister and I read the Cat Who Series. As we finished one we waited anxiously for the next one. I agree the last book was very odd and did not make much sense. But, the series was fun to read. Love the cats, the mustache and the apple barn house. Thanks for reminding me of them. My...
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    Thank you for your kind words and support. As I am sure with you, we have many good positive...

    Thank you for your kind words and support. As I am sure with you, we have many good positive days and some not so much. Hearing others good and bad days is a wonderful help. I am not too far from you. I live on the US side of Canadian border next to Cornwall. I have been to museums in Ottawa...
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    Bipap and dry mouth

    Have you tried turning up the humidity on your Bipap? I have mine on five now because I have a cold and it does see to help some. Give your Respitory therapist a call. I'm sure they will have some suggestions for you. One other thing I can think of is to try using a dry mouth gel in your mouth...
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    Shivering with ALS?

    Reading your comments helps me understand my symptoms too. I get the bone chilling cold in my hands a lot (I thought it was just from winter) and my legs will get cold and feel like the cold is coming from within them. I will get a heating pad and start wearing the fingerless gloves. I was...
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    I was diagnosed in April 2012 and my son died the next month in May. I had to deal with my sons...

    I was diagnosed in April 2012 and my son died the next month in May. I had to deal with my sons death first now ready to face ALS. I do have a positive outlook because of my faith and many friends who have been truly wonderful.
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