Recent content by Becca15

Yes it is this week. Im not anxious, just very upset with the doubt and unkindness from certain individuals in this group who have given the same disrespect and disregard to many people I’ve spoken to on here. Prior to their diagnosis

Absolutely disgusting judgmental individuals on here. Won’t touch this forum with a barge pole anymore. No kindness and doubtful. I’d rather stick pins in my eyes than get advice from here. Loads of people asked for advice on here and was told it was in their head or no ALS only to be diagnosed...

Unable to smile anymore. Unable to push out stool. Fingers stiff. You were very dismissive but not just to me, lots of people who are now diagnosed with ALS after your rude and dismissive comments. They don’t want to post back because of this and I don’t blame them. I’m also choking on my...

I posted on here with my symptoms previously. I was dismissed by many. I’ve seen a lot of people on this forum get dismissed like I did only later to get a diagnosis. I will not be coming on here for advice anymore as the attitude of some has put me off. It’s left a very bad taste in my mouth...

Been referred to MND clinic. Thanks for closing my thread. Disgusting

When the doctors are clueless, I had no choice but to post on here

How is this a clean EMG?

Update: saw neurologist who has seen less than a handful of patients with ALS. Admitted my private EMG was abnormal, I asked for a repeat in a few months and was refused another EMG. He says he doesn’t know what it is. 🤦‍♀️🤦‍♀️🤦‍♀️ I explained that I had polyphasic potentials, PSW, reduced...

He didn’t test my arms on EMG. However he did NCS on them.

I’ve struggled with my breathing when supine for a few months now. My voice is different and I find it hard to swallow at times. I’ve had several face twitching and neck spasms to the degree it’s caused neuralgia as the muscle at the base of my skull it spastic hence the reason why I’m on...

I’ve spoken to MND connect already. They advised me that clean EMG’s a few months ago means I don’t have it even when I told them I had progressive worrying symptoms. Three months after my last EMG, it’s showing issues. I’m honestly praying it’s something else but it’s hard to ignore my...