Recent content by beachbaby

  1. B

    father has no joy

    For good reason. He was diagnosed five years ago and his life now is his chair and his television. He doesn't go anywhere, doesn't want to do anything. He feels like his room is his prison. I have no idea how to help him see the positives, that he is still alive and can spend time with his...
  2. B

    als with dementia...question

    my dad experiences... I have noticed that my dad forgets little things like times that I have called him or conversations we've had he seems to forget that we already had that discussion. My father is progressing rapidly. He was diagnosed five years ago, but it seems that every week it gets...
  3. B

    New caregiver in need of some support

    Enjoy the time that you have I hate to sound morbid and blunt, but my dad has been suffering from this for five years. We feel so blessed that he has made it this far. It's the hardest thing I have had to face in my life. I have a life and two small children as well as my dad to take care of...
  4. B

    I seem to care more than he does

    Thank you That is a wonderful idea to have him write down what he wants as he progresses. He has always been this tough, biker, hard as nails kind of person. He's a veteran as well, so the fact that he has to rely on other people for anything is just horrible for him. I can relate, I am just...
  5. B

    I seem to care more than he does

    My dad and I talked last night and he's afraid that his speech may be going. I told him that we need to start making some plans and he responded that we don't need to do anything. He doesn't want to live if he can't talk. That is basically what he is saying to me. I don't think he would ever...
  6. B

    New here, father has ALS

    Thank you Thank you so much for your reply. I know that he is having a really hard time giving up his independence. He has a wheeled walker and assistance bars in the bathroom as well as a shower seat. He also has an electric wheel chair. He breaks down when he has a hard time opening a water...
  7. B

    New here, father has ALS

    My father has ALS. I am his caregiver. It is really difficult. I have come to terms with the fact that I will be losing him, I think. The hardest part right now is dealing with how stubborn he is. He lives an hour away from me and by himself. He refuses to live with me or my Grandmother. He...
Back
Top