Recent content by BarrCarr

We have two Biobidets top of the line with heated seat and water if we want it. It has a hand remote too, which I reccommend. We bought one and liked it so much, we bought a second. BidetKing does sales on and before holidays. We purchased for $500 each. They listed for 3x that, I think...

Regarding Hospice, I encourage it. They have been better than any ALS service providers. Ask for palliative care.

Research. I get tapped twice a year - in my third year.

Here is the legislation and how it works. Text - H.R.3537 - 117th Congress (2021-2022): Accelerating Access to Critical Therapies for ALS Act 5 years of $100 million is allocated. Mark your calendar for December 23, 2025. A report is to presented on who received the money and how much. It will...

This was mine 7/15/21 Protein, Total, CSF 41 mg/dL Normal is 15 to 45 mg/dL15 - 45 mg/dL

Handicare P440 Ceiling lift : $1,250, brand new, installed but never used, w/ charger. I am interested if you still have this. How long is the track or are you selling only the motor? I am in Tampa.

I like the measures but also see limitations. I regularly do ALSFRS and ALSFRS-R and track monthly noticeable changes on a spreadsheet. Between them all, I can kind of project and plan ahead. Every type of equipment (wheelchair, lift, etc.) were obtained prior to needing them. The value is the...

Medicare plans are by region. What part of Florida are you in?Also you can go directly to Medicare.gov and select plans where you type in medications you us and it tells you the cost.

May I suggest you go to Facebook and join the two MV-1 clubs. The MV-1 is the only vehicle ever made for wheelchairs from the ground up. It handles all wheelchairs. The Facebook club members answer every question about the vehicles. The cars are no longer made but the resale market is hot on...

My brother died with ALS and I have it. In 2012 Mayo isolated the C9ORF72 gene and I was tested for it in 2018 as I was showing ALS characteristics but my naive young neurologist wasn't sure that is what I had. The gene test confirmed it. My remaining brother asked if he should be tested. I...

Thank you for sharing. Brian and his wife have led efforts to help ALS patients and I am grateful.

Prior to knowing I had ALS, I was having a lot of cramps. I bought something called a BEMER and the cramps went away. 3 months later, I was told I may have ALS due to fascilulations. After more than 3 years, I never have had spasticity - because of the BEMER. It stimulates the blood in our body...

Have you seen "LiftSeat Powered Toilet Lifts"? I bought one a year ago and put a bidet on it. It's about $2000 but bought my independence for over a year.

Yes, it was sold; I am sorry.

Thank you.