Hello everybody,
Now question is about me. I've go pretty confused today as long story short neurologist from Neuromuscular Clinic during clinical exam diagnosed me with pyramidal signs. Left slight Babinsky and asymmetrical reflexes, some of them diminished. It's confusing as another...
I think your neuro is over reacting, for EMG to be conclusive it needs to have specific pattern like this:
http://www.wfnals.org/downloads/A%20revision%20of%20the%20El%20Escorial%20criteria%202015.pdf
Basically you need specific changes in few spinal regions which you don't have, also signs of...
I have on privileges to post publically, but I've seen your EMG and it has absolutely nothing to do with ALS. Criterias are strict and you don't meet any, 1+ fib in 2 places is nothing and statistical background noise, otherwise EMG is completely normal. You cannot consider it dirty EMG, you're...
Laurie - obviously you're right, it has better survival rate in 5 years window, my point was he's at his 4 years with very little progression so he's luckily looking for more then that and this seems pretty rare
Lenore - thank you for your comment. This is very comforting, it seem that...
Thank you for your opinion, I always value it. I've must made the mistake thinking of disorders like PMA that is said to have 33% survival rate in 5 years, flail arm would fit perfectly besides I though UMN involvement is seen and that differents it from pure LMN syndromes
SMBA is easy genetic...
Welcome,
I've been on the forum here some time ago asking about my case. Until now I'm pretty much confident I have Benign Fasciculation Syndrome, Idiopathic Fasciculations, you name it. (I never self-diagnosed ALS though, it was a concern of my neurologist, as I had spontaneous activity...
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Thank you both, that part was indeed confusing and now is clear, that's exactly what top neurologist like Martin Turner said about changes in strong limbs and I also found that idea in some studies
I will try to follow up with the same neurologist to check for changes, I can't self exam but from...
Hello everybody
I hope this is my last post here, it's been a bumpy ride trough last half year by I'm getting over my fear of mnd
My symptoms that are consistent with fasciculations, jerks and spasm are not any better, in reality they are worse
No weakness or any other signs of als
I'm just...
Hi, i read your message on the board regarding ion channels hyperexcitability, could you emphasize more on that? I was under impression that NMJ disorders with channel antibodies e.g..anti VGKC are opposite to MND as they point to neuromytonia
Obviously excitotoxicity comes to mind, that's why I...
Due to rules I was not able to ask in your topic, so maybe I ask here:
I have EMG changes and clean clinical exam, parathyroid issue was my neurologist conclusion according to additional ischemic provocation test done on EMG, but my blood work came clean twice
I'm just interested if you ever...
Re: Take the advice given on this site .. get a qualified 2nd opinion
I know it is not allowed to post in someone else topics but I hope this time an exception can be made, as I'm facing similar dilemma
I have EMG changes and clean clinical exam, parathyroid issue was my neurologist conclusion...
Hello!
My old threat was closed, so I post here. I'll try to keep it short and as always I apologise to take your precious time
I'm treating my anxiety and I think I'm making some progress, I would gladly let it go if it wasn't for that EMG I had 2 months ago...
Was told to do a follow up with...