Recent content by bala80

LDN is a very useful therapy for autoimmune diseases like MS, Crohn's, etc. or diseases with an autoimmune component. ALS is not an autoimmune disease so it hasn't been useful for ALS. It is definitely NOT a scam. It just is not effective for ALS unfortunately. For MS it is probably the best...

Lithium carbonate in the States is very cheap for 150mg pills: Good luck getting a script for it. I've read on the forum some PALS have been having problems getting a script from their neuros. Bloody outrageous if you ask me.

Hi Jeff, I was wondering why you opted for the lithium orotate rather than the carbonate as used in the study.... also are you being monitored for blood lithium levels to be 0.4 mg/L as mentioned in the study? I know it is natural to be skeptical about this, but if I'm not mistaken it was...

Thanks for the support guys. Just to clarify, the hospital treats ALS patients using traditional chinese medicine techniques, not to be confused with the one that injects stem cells. The idea of injecting stem cells into someones brain only for them to eventually killed off is not appealing at...

I am leaving in a week, just waiting on getting my visa accepted. Al, I understand your stance, but I am 27 and have no wife no kids and my situation is totally different. I need to have something to cling onto, and at least say I gave it a shot. If I was older with mature kids I doubt I would...

Hi there, I am recently diagnosed, but a rare poster, fairly young 27. I'm progressing rapidly, and I have made the decision to go to China ti the TCM hospital in Huaihua which I'm sure most people would have heard of. This may be stupid and these guys might be peddling false hope, who knows...

Oh yeah I agree.. I love this time of year. Unlike most of you guys, Christmas in Australia is all about the sun and outdoor BBQ get togethers. If Santa was down here, I think he'd be wearing a singlet, shorts, sandals and sunglasses... wishing everyone a happy and loving festive season :)

Hi guys, Just wondering if there are any young ALSers (20's) using the forum. I know there are people in their 20's here that think they may have ALS because they twitch, but are there any actual diagnosed young people... Just want to know whether I'm all alone in this. Thanks...

To mamaoftwo See my posts in a recent thread entitled "I think i have als". I am disheartened by the pace of this thing, I am getting weaker on a daily basis, and the widespread twitching is unrelenting. From reading previous postings, my situation is quite similar to Chad Bowman, a previous...

I only noticed it when the twitching recently spread to my forearms, my forearms don't look too wasted yet. With the wrist atrophy, I still have fully functional hands at this stage, do you guys?

wow, exquisite! you are quite gifted :)

Hi all, In regards to muscle wasting, I haven't really noticed true atrophy in my hands yet, but I have wrist atrophy. Let me explain: when I clench my fists palms facing up, the flesh has sunken in either side of the tendons there (where you take your pulse). Has anyone else noticed this?

Hi all, Sorry for the brief absence, i have just been trying to get my head around things and what I am going to face. Bdyle, I was not deeply offended by your comment, and I realise your intentions were sincere, and I thank for for your ongoing concern. Mike I thank you as well for your...

i'm sorry for not making it clearer. In a nutshell, muscle twitching and burning feet sensation started August, had an EMG late August which was negative. Symptoms progressed over the next month and I had a second EMG in late September which was also negative. During this whole time I was on...

Hi all, I definitely do not want this to degenerate into a God debate. I have posted in a thread called scared of ALS recently which explains more about my situation and my mental state with regards to this. I am an atheist, and as such, I believe that when we die there is nothingness, no...