Recent content by AZmujer

My husband died on Aug. 16. He never was able to make the Tobii we got work for him. But thank you for thinking of me.

So very sorry. He is lucky to have you present with him. Wishing you peace at the end of the road, and strength to continue the journey.

I am so sorry you have to be here. I remember those first, terrifying weeks very well. You're getting great advice. Other resources include the ALS Association if you have one in your area. Also find out if there are ALS clinic where you live, or where the closest one is. The people there can...

Hello all: I have several pairs of adaptive men's pants/shorts that are in very good shape — a couple pair have never been worn. I am happy to ship within North American to someone who can use them. If you want them, or know of someone who could use them, please send me a private message...

How lucky you were to be with him as he died, holding his hand. I hope that brings you peace and comfort. I lost my husband on on Aug. 16 (his birthday) and he died in my arms. I wish for you strength as you embark on your journey without his physical presence, but he is with you, and will live...

For those who have not heard, I'm sad to tell you that my husband, Jamie, died on the morning of Aug. 16 — his 63rd birthday and the 10th anniversary of the day we met. A complete cycle. The details can be found on our CaringBridge site: Jamie | CaringBridge He got his wish to die at home. He...

Atsugi, Thank You So Much. I think that is exactly what I needed to hear right now.

I am so exhausted and spent and emotionally numb. My husband has been in hospice since late April, takes morphine and Ativan among other drugs. Paralyzed from the neck down but still talks and can eat and swallow. Uses a biPAP but no peg. He dozes a lot during the day and has been battling...

Oh, the joys of being in a country that is progressive and enjoys democratic socialism. In the U.S. our crazy medical system makes it very hard to get what you need. Our Medicare system will pay for a larger display, but only for communication. It turns off the Internet access, which is...

Hi Doug: We are using a loaner Tobii (the tablet + software) from AZTAP, working with a woman named Mellowdee. We didn't meet a Clayton. That office is actually crawling distance from where we live. But Jamie hasn't been able to make the eye-gaze work. Mellowdee is coming over on Thursday to...

Hi Tyler: Did you already sell this device?

Greetings: My husband PALS can still talk, so he doesn't need communication help at this time. However, he's lost the use of his hands, leaving him bored and frustrated because he can't engage in the ways in which he is accustomed. He really enjoyed conversing with people through Skype, email...

Hi Amanda: You have the hardest job of all. Believe me, I have felt like you feel a thousand times. And there have been times when my resentment leaked out and my PALS felt it. I can imagine so vividly how it must feel to be so helpless and dependent, so everything I lose it, it always comes...

P.S. I should have made it clear that we have hospice at home. He plans to die at home, and hospice knows our wishes and will do everything in its power to make that possible.

Hospice is such a personal decision, and you will probably know when it's right for you. One thing you might want to check out is whether your local hospice has a Palliative Services division. It provides extra support, but is one step back from hospice. We used it for a few months and...