Recent content by awieleba

Hi Writer, not sure how to send you a private msg, I saw you left a msg on my page. I do not come on the site very much anymore but send me a PM if you would like more info. I am doing well

My Gp said the same thing about atrophy on hands and loss of 'muscle bulk', AND my ALS neuro told me I had atrophy in lower leg (inside of shin) but when emg'd on those area's and clean, als was ruled out. My ALS doc did not agree with atrophy on hands ( I will tell you that they have lost...

andy, I understand your predicament. I am almost 4 years into this. I switched from an ALS clinic to a MDA clinic, and the doctor that I saw also heads up the ALS clinic there. He thinks/suspects a form of Mitchochondrial, and we will see what genetic lab work says.....I am not holding my...

spring owl, please PM if you see a LLMD in the area. I live in Rochester, not far from you. Also wondering what doc/neuro you saw in the area. thanks, A

maybe you should switch to a MDA clinic. THat is what I did and where I am being seen now.

teacherman, I know how you feel. I know it is confusing and concerning when you have atrophy (muscle shrinking) and no answer. I have the same issue. My PT said I was clinically weak in lots of area's to her, although my ALS neuros said not the kind of clinical weakness for MND. And that is...

cutrill, I understand your concern. I have the floppy muscle tone in legs, and all over muscle loss. I even as well had atrophy noted by doc in shin but when emg'd was fine, same with hands and a large dent in forearm that was clear.My hands, they are thinned and hurt, have hard time doing...

I got your pm and spent too much time replying to your thread and it disappeared! ugh, I will touch base soon I have to go and have a busy few days but I will get back with you.

HI, I read that you have C Diff, I had that in 2008 for 4 months. If you have questions let me know, I dont have an als dx but I suffered with c diff for over 4 months and was in the hospital 2x for over a week each time. I had iv flagy and vancomyocin. It turned into psdeuomembranous...

Did your doctor check you for dermomyosotis (sp?)?I ask since you mentioned the Skin arthritis. A friend of mine has this and she had a hard time getting a diagnosed. Basically she has skin rashes and joint pain along with weakness. turns out is was the above mentioned condition and it can...

Boo......................

Hello~ I have been debating about posting an update or not. I dont have a high comfort level about it. I have had people pm me or ask how my appt went. I also, know how it feels to be un diagnosed and wonder what ever happen to those that had simliar sx and have not posted in a year and how...

bachelor tonight! and let me know about what I asked you, ok?

I will pm you tomorrow about my appt, I am walking out the door. didnt want you to think I forgot about ya!

I agree, I was shocked! I actually yelled out loud to the TV and my kids are like 'whats wrong mom?' I mean I Really cant stand that Vienna, she is soooo strange..... I will be thinking of you this friday and my appt/emg is the following friday........yikes!