Recent content by AveMaria

Dear trfogey, After going back and looking thru a number of your postings on PLM, I understand better why you are unhappy. You quoted me saying Biogen can afford to give it to me. It's the Right Thing to Do, Biogen! (I think that will be my new mantra:) They CAN afford to give it to me...

Sequoia, Can you pass along an address for us to send our letters to Biogen, AND, where do we get a form letter to use, that we can add our 'human side' to? BTW-the reason I want the Dex drug -- is to add to my ALS cocktail. Besides...Biogen can afford to give it to me. It's the Right Thing to...

PALS, We are coming to an era where status quo just won't work for us. Do you want to continue to watch your disease progress-or-do you have enough energy to write just one letter, and maybe a friend/relative writes one letter to Biogen, ... and soon...we have started a "Campaign of Letters."...

Perhaps 'standing on principle,' or even arguing the point, can and does take away from the excellent post by Sequoia, and written by a dear, dear friend. Please, listen to Greg's message, and then--DO SOMETHING! Sequioa is...

Thank you to all who support this petition. Please add it to your FB page, encourage your friends & family to not only sign it, BUT, pass it on! Fellow PALS and CALS, and dear family/friends. Numbers on a petition speak. Every month that goes by sees us getting weaker. We don't have years to...

desertcat, Would you be willing to post our ALS Treat Us Now Petition on your Vet Facebook page? Our feelings are that terminally ill patients with little to lose want access to what is available that has shown safety and efficacy as soon as possible. We believe that Phase 2 drugs showing...