Recent content by Autotelic

We used it to help pay for the generator

Hi Lissa Rose, I am just now seeing your message. I’m sorry. My PALS passed away, last year. I don’t visit the site as much as I used to. But I am happy to help answer any questions I can, or listen if you need an ear. I will make it a point to check back more often.

Hi Wilson, My husband was treated at OKC VA in their ALS clinic. Our experience with the ALS clinic was mixed. We had some experience with the Dallas VAMC ALS clinic, and were surprised that they weren’t all the same. When we had an appointment at the Dallas clinic, it was a Team approach to...

Thanks everyone for your kind thoughts. I really appreciate you taking the time to post. Gooseberry, how goes it with the puppy? Mine is 6 years old now. He likes when other dogs visit but he's usually happy to see them go.

Thank you ShiftKicker, and thank you too Laurie. Y'all can probably tell from the few times I have posted that I'm a little unsure of the etiquette of forum postings. I appreciate all the good thoughts and kindnesses.

Thank you Mike. I have been a whirlwind all week. It's easier to stay busy. Less time to think and feel.

He was not on the forum Kim. I tried to get him to come by and join in or just check it out but he never did.

My dear husband lost his battle with ALS on Wednesday, May 18th. He had gone through a period of rapid progression but I wasn't expecting this to happen so soon. Now we are all trying to come to grips with how to live a life without him in it. I searched through here often looking for...

Thank you, Becky. We do have a shower chair and I was able to use it that night and again today. It was easier today because I took your advice and adjusted the angle of the chair to match his angle in the sling. Laurie's response reminded me that the wheelchair is a good option here. I'm...

Thank you for the quick response. Up until this last weekend he had been commando, in a recliner most of the time, and we used the lift and sling to take him to the bathroom for bowel movements, keeping enough pressure on the sling to hold him upright. The sling we had been using to that point...

They make a shower curtain with cut out for the chair legs. They have magnets that attach to the tub on the inside. I can tell you though from experience that I had just as much water on the floor using that shower curtain as I did using a regular one.

I know just typing that seems ridiculous but I do really need help with this, and fast. I feel like I should apologize for calling it a diaper but calling it a disposable brief might be confused with a pull-up type garment and this is not that type. My PALS can no longer hold his head or...

Re: CALS Roll call I did as you suggested Laurie and reduced oxygen and pressure, and had a positive response. He is much improved, especially in the afternoons. Thank you for your help! Mornings are rough. He does better with our helpers than he does with me. He's cranky (which is fine...

Re: CALS Roll call Thanks for the quick response. Oxygen was fairly new addition to his care. It started when he started hospice. It's been at a very low setting of 2. We were happy to get it because his oxygen readings we hovering in very low 90's with frequent trips to the mid 80s. So that...

Re: CALS Roll call Checking in, with news. We started hospice a few weeks ago. That experience has been a positive one. PALS yesterday started having episodes where he would zone out, looked like he was sleeping with his eyes open. They'd last a minute maybe minute and a half and he'd rouse...