Hi Mike, sorry I'm not sure how to reply to a PM. No, my background is in Veterinary medicine, so the basics of biology and different specialties are familiar to me, along with medical terminology. My familiarity with the chiari malformation comes from my own, diagnosed on a recent MRI. I've researched it to death in my own "find any other possible diagnosis than ALS" quest while I await my EMG.
I am confused as to why you deleted my reply to another persons post and told me not to post to there threads? I mentioned my situation and that of a friend, but only in the context of what the poster was saying- I did not think it was a thread jack. Am I somehow not qualified to post replies to others threads? Was what I said scary to others potentially? I get that, but honestly I see a lot of things here ever by mods that could be scary to others. I think I was here legitimately, my husband and I have been told he may have ALS. Anyway, I will leave now and I wish you all survivors, suffers and caregivers alike the best. If it does turn out to be the worst Dx I think we will head elsewhere for support.
Hi mike, listen not looking for anyone to diagnose me, nor do I disagree with what any of the knowledgeable people here are saying. But all everyone said is no because of pain. I've done emgs, mri's, blood work, all normal. But what about my weakness? I know everyone's is prob annoyed with me and posting, hence the fact no one has replied. I'm scared and sad. Do you know of anyone experiencing something similar
Hi Mike, why would you close my thread. I have clear symptoms of something to that of UMN or ALS. I'm only trying to get some support here as my symptoms point to nothing more than that. Why do you guys say no ALS , because I had pain throughout it all, now my thumb and index finger are clinically weak with clear atrophy, and loss of dexterity. Doesn't ALS when presented in the hand start in thumb and then spreads to the other fingers. Oh and you mentioned emg's how many times have I read that it doesn't detect ALS all the time. None of this make sense and you guys keep brushing me off. It makes me sad, I'm only here for the support. Clear Atrophy from thumb to my wrist, stiffness in thumbs, index fingers that shake.