Recent content by astro

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    Mums gone

    What a tragedy for you, and how sad your mother passed in such a panicked state. My mother passed away nearly 3 weeks ago. Please find comfort in knowing that your precious and strong mum is not tortured by this horrid and cruel disease any longer. I just take each day as it comes, some days...
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    Could this be bulbar?

    Crikey, give the kid a break. He's frightened. I know I catch myself looking for symptoms, if my finger flickers or i slurr I'm certain i have it. My mother was the only one in our family to have MND so it is not familial. Oh, unless I get it... Good luck Baxter, thinking of you.
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    Yes, it was fast, too fast. The selfish side of me wanted her to live forever, but I am...

    Yes, it was fast, too fast. The selfish side of me wanted her to live forever, but I am comforted by knowing she is now at peace, no more torture from this hideous cruel disease. Please take care of yourselves and your loved ones. x
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    Her Journey is Over

    Thank you for your precious thoughts and prayers. Yes Zaphoon how priveledged I was to be there. Something I will always treasure. Please take care of yourselves. Tracey x
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    Her Journey is Over

    Many thanks for your kind thoughts and prayers. x
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    Her Journey is Over

    :cry: Sadly my mother passed away peacefully in my arms on Easter Sunday. Many thanks to those of you who have answered my questions and supported me through this time. Take Care of Yourselves. Tracey
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    Opinions on Botox

    Mum saw her specialist. (the woman with the bedside manner of a maggot)! However she kindly had some advice this time. Botox in the salivary glands. I have read on here before some views, but could not find them. I remember that it works either very very well or could be more of a nuisance with...
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    Non Dairy Peg Food?

    Thats interesting that you say that these products are lactose free. I shall investigate further here in NZ. Many thanks for your feedback. Its one issue after another isnt it. Take Care.
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    Hi There, dont often use this site, find it quite depressing. Just wondering how things have...

    Hi There, dont often use this site, find it quite depressing. Just wondering how things have been for you and your mum? Its been fairly difficult here, just one horrible issue after another. She struggles on. Tracey
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    Non Dairy Peg Food?

    Not been a great couple of weeks here in NZ. Mum has been in and out of hospital after her suction machine failed! Meetings with hospice and the multidisciplinary team have got more supports on board. Yah. She is losing so much weight due to not using the Fortisip or Ensure. She believes that it...
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    Blocked salivary glands

    meat cleaver....not sure how this would be done.? She has papaya tabs so will tell her about it. Only thing is she cant take anything orally now! so it may cause her to gag or choke.
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    Blocked salivary glands

    Its been some time since I posted. Mum is coping with her peg, but was losing weight, so is now hooked up to it for hours at a time. She had a nasty fall down a 6 metre bank and of course with no voice could not call for help! She refuses to wear her emergency alarm! Mucous is a massive problem...
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    Anyone with info about Bulbar please help me

    My mother has had bulbar symptom for approx 10 months and only just diagnosed. Initially her voice was husky and slurry (she hated people thinking she was drunk), then it started to be difficult forming certain words till now only a few months later and she is unable to swallow any saliva, speak...
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    Breathing worsening

    At last we have a diagnosis :( and how quickly since then has my mum started to decline. Today she is worried that she is unable to swallow at all, and tells me (well writes me) that she is not breathing well. I understand there is cpap,is that the same at bpap, and what can she use throughtout...
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    Diagnosed MND

    :( Today we met with the neurologist and mum was diagnosed at long last with MND. It did not come as too much of a shock, but we are very sad. Swallowing has got worse along with her breathing, so sadly having her hip replaced which has been causing her immense pain cant be done. Limbs are...
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