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Hey Avril....oh I have a friend....thankyou so much. I am hating this journey and I fear its only just begun. I am new to this posting thing and unsure how I work it to message you privately on this forum. I'll keep trying to figure it out. I'm waiting and watching for changes. Take Care. Tracey

Hi there,
hope you & mum are hanging in. Saw your post & just wanted to wish you all the best. Feel free to contact me if you want. My mums progression started like your own mothers. Slurring & swallowing difficulties continued to progress. Then came legs and now shoulders. But your mothers journey could be different. One of hardest things is not knowing what will happen next. Living in the now & enjoying her as much as possible is really the only way forward.
Sending support through the airways, Avril