Thanks to all of you. I am feeling better. DH went to visit his parents and I will share this information with him when he gets home.
I really appreciate all of the information.
Wright,
After the EMG I just assumed that they did all limbs. He had never said specifically. Then when we were talking last night he said they only did the right side and his back. Again today I asked specifically where they did the EMG. He said right foot (foot with the foot drop), right...
Thanks Cindy and Happy.
I know this is a process. Thanks for allowing me to vent here. I need to be strong for him so on this site I feel I can release just a little.
My husband has always been the most mild mannered person in the world. We use to say that if a building was on fire he would calmly say "the building is burning it might be good to move on out". Almost never short tempered.
We had our first ALS clinic visit and while thought it was great he...
My husband and I were talking last night and I was trying to reassure him that since the EMG was clean that was very good. Somehow I thought the EMG was done on all four limbs but they only did the right side and back.
This makes no sense to me. If there are issues will all four limbs at...
Went to Duke and we actually feel a little better now.
When the doctor did the exam he found a few things that we hadn't even noticed. The right side of my husband's chest was sunk in - we knew there were other areas that had lost muscle but didn't see that on his chest so it shocked us...
Randy,
Unfortunately I don't have any answers for you. My husband has not been diagnosed yet and hopefully he will find out he has something altogether different.
I am a very infrequent poster but have read this board for nearly a year. We have been searching for answers that long. Many on...
Lori, I don't post much on here but I spend a lot of time reading right now. I just want to say thanks for a link that you posted a while back that has a very good simply explanation of UMN and LMN and ALS.
We go next week and hopefully my husbands DX will be as good as yours.
My husband has a "pins and needles" sensation or his legs falling asleep all the time. He for some reason feels this is a positive sign against an ALS DX.
Thanks all. We have our visit in a little more than a week. We are very hopeful that the doctors will be able to tell us something other than ALS.
My husband is starting to have quite a bit of pain and so we are hoping that is a good sign.
We got the tests results from the nerve study yesterday. The Neuro said the nerve study on the legs were normal. He also said that the nerve study on the arm is not normal. His problems started in his legs and has moved to his arms.
The Neuro said he believes my husband has compression...