Recent content by aschoos

Thanks Laurie. I'm new to using this forum. My stepdaughter was diagnosed with Bulbar ALS in Nov 2018, and was using a feeding tube by June of this yeart, trach and vent by July, and eye gaze technology only for communication by early October. She is completely immobile. She is 52, single, twin...

My stepdaughter is having trouble keeping her head from falling to the side when she sleeps, partially uptight in a hospital bed, causing neck pain. Pillows and side towels no help. I rolled a big towel around the top of her head and tucked behind her shoulders. This worked, but is very warm...

I would talk to her first, if she has otherwise done a good job. Caregivers are hard to find, and it's a difficult job. What if she was up all night with a sick child? Didn't want to leave you stranded by calling in sick? Pretty harsh to feel it doesn't warrant a conversation at the least. You...