Recent content by asantiago

  1. asantiago

    Another one bites the dust DEX

    It has not been cured in part because of its complexity, but imo there are so few with the disease that there isn't enough money to be made so not enough people looking for a cure.
  2. asantiago

    swimming?

    What if you strapped flotation devices on? Maybe then you could swim?
  3. asantiago

    My mom has a secret

    A woman who stays in an abusive relationship is codependent. Recovery from codependency takes YEARS most likely way more time than your mom has. If she loves him and wants to be with him, interjecting and forcing something she doesn't want is going to upset her more than it is going to help...
  4. asantiago

    I tried to ignore my symptoms....

    What you described sounds nothing like ALS so rest easy on that front.
  5. asantiago

    Symptoms are worse- please advice? Wright maybe?

    I second what Ms. Pie said. Subsequent EMGs are the result of having first an abnormal EMG not because the first was clear. Clean EMG + NO Weakness = NO ALS.
  6. asantiago

    Frustrated and sad

    You're not being judged at all. In fact we all can empathize with your situation. You have however been presented with the idea of seeing it from the other side. In making statements that your SIL was selfish and driving a wedge, it seemed you were only seeing your side of the situation. The...
  7. asantiago

    Frustrated and sad

    I like that idea a lot - of having it early. I also always try to see things from both sides. Now I don't know either of you so can't say for sure but when I read it I did think of this..... If Christmas is important to her and her family and is a long standing tradition, then she is probably...
  8. asantiago

    I replied to your post but off to moderation it went. Research Oral Sodium Chlorite many PALS...

    I replied to your post but off to moderation it went. Research Oral Sodium Chlorite many PALS are trying it now.
  9. asantiago

    Alternative therapies

    It has been boo'd here, but I still would do OSC if I had ALS. Oral Sodium Chlorite is an alternative treatment that many PALS are trying now. It is believed to be similar to the drug NP001 that is currently under going trials and has shown some positive effects. Go to the ALS dot Net forums...
  10. asantiago

    Stressing out major over ALS...

    Only when you stop looking for ALS will your symptoms go away. Read this, then reread it, then reread it again. Now start living it!
  11. asantiago

    Worried for my Dad - Family History

    Yes, ALS is such a mystery in so many ways. My mom's grandmother lived for many years in a wheelchair, my mom lived only months after onset and her brother is coming up on two years with it (I think 2 years I lose all track of time) so everyone can be so different. I really hope its not ALS!
  12. asantiago

    Stressing out major over ALS...

    Personally, I don't see anything in your post that would allude to ALS. Have you tried a chiropractor? Sometimes when I cannot take a deep breath my breathing is constricted by my back being out of place. The more you obsess the more you will notice, believe me I've been there. As someone...
  13. asantiago

    Worried for my Dad - Family History

    We are a FALs family as well. My grandmother's mother died from ALS then my grandmother lived to be 73 and died of congestive heart failure with no symptoms of ALS. Then my mom ended up with it. So my grandmother had to have the SOD1 gene mutation in order to pass it to my mom but she never...
  14. asantiago

    Years of symptoms...does this sound like ALS progression?

    1) Get a Job 2) Stop smoking 3) Start Exercising 4) Eat Healthy Those four things will cure most of what ails you. You most definitely do not have ALS based on anything you typed. If you feel you have been having some issues for 6 years, well if it was ALS you would probably be dead by now...
  15. asantiago

    Happy Friday :)

    Happy Friday :)
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