Recent content by aryakangler

I woke up yesterday realizing it has been 1 month. It feels worse than it did the day she passed. Thank you everyone for your condolences. Today will be the first time I go to grief counseling. I hope it feels better. I miss you mom. I love you. I want you back.

Thank you all. Everything happened so quickly. Too quickly. I've never lost someone so close to my heart. I thought I could go back to life, but at home I feel like I am not where I should be. My bed doesn't seem like my bed. I told my wife I was finally going to sleep by her side, but I just...

R.I.P mom 11/10/1958 -- 9/17/2015 You are my everything. Save a place for me.

Re: My mother has ALS R.I.P mom 11/10/1958 -- 9/17/2015 You are my everything. Save a place for me.

they switched her pain medication because they were afraid it was a reaction. itching continued. the itching started, although very minor, long before she was on any medication other than her usuals she has been taking for years.

Mother has unfortunately been transferred to inpatient hospice care. Her pain became uncontrollable at home, and I was completely unable to get her comfortable. It has left me crushed that she is not in her home where she wanted to stay. She has been heavily sedated as any consiousness results...

Anyone have experience with extreme itchiness? I've scratched and scratched for her and she is almost raw.... I had her bathed today thinking that would help but she still itches all over her belly, neck, and head.

Mom had the full variety of support staff from in-home hospice today. Honestly don't feel the weight off my shoulders like I expected, but it is far better than being alone. Social worker was "slightly" helpful. Other than saying I was overwhelmed and trying to talk me into having her sent to...

Based on the overwhelming support, I am going to let the ship sail regarding family members upset with my handling of the situation. I called my aunt and gave her an update, based on my moms wishes. Everyone else who cares will have to take it upon themselves to be apart of this. I'm the younger...

Sorry your here Cyndi, but you've come to the right place. My mother has bulbar onset ALS and has lost abilities very quickly. Medication with applesauce was helpful for a time, if you haven't already tried that. She chose not to use a PEG so unfortunately I have no experience with that. For...

I have resisted informing anyone because of her request. I am just afraid of being blamed for not including other family members. Moms point is they have phones and cars, and know where she lives. No one is stopping them. But because they have been so removed, they still think she is getting...

Rhonda I have immense respect for the care you have provided your husband. I am a son taking care of his mother alone. I don't have a lot of experience, nor can I fully relate to the struggles of your situation. You've come to the right place! I posted only a few days ago, and through advice of...

I made what I hope to be the correct decision and brought in in-home hospice care. They were referred to me by the local ALSA chapter, and upon entry immediately set out to make my mother comfortable. I am set to meet with a social worker after the holiday to tackle psychological issues related...

I truly appreciate the responses, and I hope I haven't come across as dismissive. I do need professional help. I just don't know how to get it. I feel everything I've tried causes my mother stress. I am trying to make the best decisions possible. My issue is, at what point do I say, "Mom I'm...

I tried to explain palliative care today without using "hospice" and she is not interested. The mere mention of it caused a crying episode. She has been taking medication with applesauce for months, but refused all day today. She has decided not take any of her medication anymore. I can't bring...