Recent content by Artista

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    EMG rules out PLS?

    Dad's had a PT come to the home for almost 2 years. OT couldn't do much so earlier on that was stopped. Bro texted this to me so spine rehab doc is it now. I hope Mozaffar is right but still he said with any movement the spine is affected and so it'll get worse if nothing is done. "Mozaffar...
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    EMG rules out PLS?

    He really doesn't get around much. He has a caregiver wed thru fri for 12 hours each day (he doesn't need help in the night) and my bro is there the rest. He does transfers. Caregiver does less and uses diapers until the hoyer comes. He's had brain MRI's. Minor strokes but some neurologists...
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    EMG rules out PLS?

    Why doesn't he believe in PLS? I mean ALS kills you. So what does he call someone who's like years in? ALS? Doesn't make sense. Unfortunately my brother feels dad saw the top doc there so they are done. Spine rehab specialist is next. I myself am not sure what an official diagnosis would do...
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    EMG rules out PLS?

    I'll see if bro will oblige. I'm not on the release of info. Dad saw Dr. Mozaffar if anyone knows him at UCI.
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    EMG rules out PLS?

    Thanks shiftkicker. I don't go to the appts as I'm 500 miles away. I just know what my bro says. If I bring it up it's shot down and my dad and bro take a depression dive so no point. I assume the neuromuscular specialist who's top at UCI in the ALS clinic would know about PLS. I don't know.
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    EMG rules out PLS?

    It's been awhile. My dad finally saw a neuromuscular specialist at the ALS clinic in Irvine, director at UCI so top one, 3.5 + years in. He reviewed emg and mri and concluded no neuromuscular disease. Emg ruled it out. Brother has documented everything since 2017. He's had 70 falls. Doc says...
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    One sided PLS?

    It's still up in the air. Just want to know if 1 sided pls has been heard of.
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    One sided PLS?

    Has anyone heard of just one sided pls? My loved one's weakness with sensation intact has been in the left arm and left leg since 2017. Just wondering with those diagnosed with PLS, how common is it to be one sided, just the arm and leg of that side. Thanks!
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    Pls?

    He's worried. It's part of his nature. I'm not there. I'm not sure if it's better or worse as I suffer from anxiety and depression. Pills help some. Anyway, thanks. I shall try.
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    Pls?

    I guess my concern is hearing some people here say they or someone they know improved their functioning muscles to compensate so it looks like improvement when it really isn't or much. You're right tillie, I'm not there which makes it harder since you can't see how or if he's compensated in...
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    Pls?

    Hopefully this works. Attached some pics.
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    20180725_191142.jpg

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    received_10155706727664290.jpg

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    received_10155706725094290.jpg

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    received_10155706723444290.jpg

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