Recent content by artist09

Thank you rcharlton. I just saw your post. Dad's progression has been pretty fast this year. It started at the first of the year by having trouble raising his arms above his head. Now, he can barely raise them above waist level. He lives alone and manages. He still drives and feeds...

Loralie, yes, I don't recall getting twitches with my anxiety in the past....but maybe that is just it.....they were insignificant at the time, so I didn't even notice nor think about them. Maybe we have always twitched a little with anxiety and never noticed it. I hope your twitching gets...

My Dad was also diagnosed in June. June 17th, my daughter's first birthday. I have 3 kids and my sister lives 2 hours away and I'm 45 minutes away, so most of the caregiving falls on me. Everyone else is right. Take care of yourself and your baby first. Otherwise you will not be able to...

Thank you about the info from the guy at Vandy. This sounds exactly like my Dad...using one arm to help raise the other one. He has been dealing with this for 9 months and it is still confined completely to his arms. The first neuro in Jackson said he had only lower neuron findings, but this...

After seeing 3 neurologist that diagnosed my father with ALS. The third at the VA hospital thinks he has a variant called Flail Arm Syndrome due to clinical diagnosis and the absence of some typical ALS signs. We have 2 months before we see an actual ALS specialist at Vanderbilt. (4 month...

Thank you BLPhill and Ims9258. I checked out the "caregiver crazies." I am so glad to know that others experience this too. It makes sense really. Anxiety can cause twitching and dealing with a loved one with ALS causes Anxiety. It is vicious cycle. I haven't told my Dad how hard his...

I'm so glad to have found this post. I posted something similar and someone sent me here. I started having symptoms the moment my Dad was diagnosed with ALS in June. I twitch all over and now my thumb locks up and doesn't seem to work right all the time and twitches too. I'm 35 years old and...

Thanks. I'm going to a good Chiropractor friend tomorrow and see what she can do for it.

Hi Miss. I just got your message about the Memphis VA. Yes, I'd like to have private conversation about this with you on here, but I'm not sure how. I'm not even sure if I'm posting this right. :-)

I am a 35 year old female with 3 kids ages 1-6. My single 66 year old father was diagnosed with ALS in June 2011. He has had weakness since January 2011. So, of course, at the point of his diagnosis I read a lot about ALS and when I read about twitching as a symptom I realized that I too...

I just got word today that the VA will offer assistance for my Dad. I assume it is due to his exposure to Agent Orange during the Vietnam war. Does anyone else believe this is how they contracted the disease?

Hi, My dad was just diagnosed with ALS. I started the paperwork today with our local VA chapter. He is still in the early stages and only has lower motor neuron complications now. His arms and hands are mainly effected. Does anyone have any advice on dealing with the VA and what assistance I...

He had the EMG done today. It doesn't look good. It showed signs of loss in his back and legs too although Dad can't tell that those areas have problems. So, it is progressive. The doctor is saying it could be ALS or Kennedy disease. (I didn't bring either up.) He has ruled out Neuropathy...

Yes, all of this is true. I don't expect to get a diagnosis at the next visit, and if I do, I'll get a second opinion anyway. If they want to run more tests past the EMC, I plan to take him to Vanderbilt in Nashville rather than stay in our small city for diagnosis. Vanderbilt is known to be...

Thanks Chase and Notme. My father lives alone and an hour away from me. I am concerned about his safety simply because he is alone and he is not the type to ask for help. Whether it is ALS or not, he has an issue and it is effecting his daily life and ability to care for himself. He has...