I think you have to have one more post to be able to receive a private message. As soon as you can send/receive private messages, I will send you my phone number and you can call me. I would be more than happy to help you in any way that I can. If you have contacted the ALS Association, Beth Bumgartner, Patient Care Coordinator can give you my number. If you haven't contacted her, you really ought to. She is a wonderful resource.