Recent content by art1959

kim, I don't know if they will do another one, maybe in six months but first report did not show denervation back in July 2016. When they did the first one I was talking just fine, no issues by the middle of October 2016 I was speechless, not able to talk. The speech specialist is going to...

On Jan/25/2017 the Neurologist did another EMG to compare to the one done on 7/20/2016, here is the report, so let me know what you all think. This test is just for left side of body, right side never done. Summary: Nerve conduction studies of the left arm and leg demonstrate mildly slow...

Gooseberry, I am also seeing Dr. Elamin who in his note also put sleep apnea and Dx of ALS. Dr. Rozas is the one I have been seeing and this year will be her 10th year in practice after receiving her Doctorates degree in 2007 from university central del Caribe school of medicine. She is a...

Thank you Atsugi and Gooseberry for your comments and I do use James Haley in Tampa. The Doctors there are good but also The OVA has tried to get the Doctor who runs the ALS clinic there and respiratory Doctor to do DBQ but they refused. I use to go to Gainsville and Lecanto VA but transfer to...

I take Nuedexta 3 times a day for Pseudobulbar affect and it works great for me because of laughing and crying issues. It has decreased since taking it. I wish you and yours all the best.

I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...

I believe there is one in spring hill, I will check it out Kim. I'm very happy for those vets who get vans and stuff but the Neuro I'm dealing with is like no other. She has a Dr. Fellow intern do the needle test and it took 2 hours to do just my left side. She wont test my right side. She is...

went to VA for EMG and they said slight change from first EMG with this one showing slight atrophy and denervation changes. the neurologist said she has never seen anyone in the almost tens years in practice where someone lost ability to speak in 5 weeks. the ENT doctors believe its MND where...

thank you Kim for your response but dealing with the VA is not easy. I have noticed that with the VA they can get very negative towards you if you complain about anything they do. I cant understand if it is common knowledge in the Neurology world that under motor neuron disease has 4 known...

I'm wondering since I don't have pay pal how I can subscribe monthly for $19.99 even though a year is cheaper, I would rather help this site by paying a little more.

Thank you for all your advice and I have scheduled an appointment with a outside Neurologist in Clearwater Florida. I also contacted the ALS clinic at the Florida state campus but they said there is a year or longer wait to get in. On the 25th of January 2017 I have a appointment with the VA...

Kim and Laurie the machine the VA gave me was Philips Respironics system one. Its used for obstructive sleep apnea. The other machine is Philips respironics coughAssit t70 series circuit, It was given to me because of the results from the spirometry breathing test done at the VA in December...

Laurie they did a pulmonary on me and found my inhale and exhale muscles have got weaker from exam done in 2014. That's why they issued the lung cough assist machine and suction machine for excess saliva. I have contacted a Neurologist in Clearwater FL who will see me in April this year.

Thank you Laurie for your response and as far as the other stuff you mentioned , all I have is one paper that has all these numbers for motor nerve conduction, F-waves and sensory and mixed nerve conduction. This page has all these numbers that I don't understand what they mean. The other page...

thank you Kim for your response and I understand why your confused because so am I. The VA Neurologist that I see, runs the ALS clinic at James Haley Veterans hospital and when I confronted her about original comments she changed everything around and said I had PLS vs ALS yet she never did a...