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  • Hi, My wife was diagnosed with ALS on 4th March (she is 47). Unfortunately the diagnosis was confirmed by 2 other specialists. I want to get a sense of the rate of progression of her disease as to other PALS. Her first symptoms started in November of last year when she noticed a slight tremor in her right hand. This gradually progressed to a weakness in the legs and inability to get up from a low sitting position in December. By the time of her diagnosis she had significant weakness in her right arm and left leg. Now two months on the weakness has spread to her other arm and leg as well. At the time of diagnosis we were shattered to hear life expectancy prognosis as low as 9 months given how quickly her symptoms set it but were also told this could be way off base and they were wrong 40% of the time at the initial diagnosis phase. Can anyone out there shed some light on this in terms of their experience>
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