Recent content by ARACHNOIDITISORALS26

No reason to be angry, we all are suffering. Whether I have als or not, I already have a confirmed spinal cord injury in my 20s that has caused unrelenting atrophy, spasticity and pain....so im sorry im just looking for help.... I'm not trying to compare with your husband I'm not insisting I...

guessi m getting shown the door lol

Thank you. Unfotunately I am only seeing one dr at this point. I went to 15 in total but they had no idea what to do with me, so just trying to find something to help with my current doc a rheumy as he atleast has diagnosed my spinal cord arachnodiitis where the others didnt even see it except...

Als is only one type of mnd :).

I think dying or not, we all deserve help, but i do appreciate all the replies. So i dont have als, but do my symptoms sound like ms or pls in your opinions? seems some think it does....im still hoping this is all from arachnodiitis.....but the umn signs are confusing.

never said was an expert, and nott trying to upset everyone, but what you said is wrong/....look at steve gleason. he had full movement of every limb in his body and had full speech at time of diagnosis....most people are not completely paralized at time of diagnosis....noone i knew was...

considering als is a progressive disease, not everyone will show up without being ale to lift their arms..... also ms pls and hsp dont show up on emg....so i can still have a mnd

it's only been 1 year and a half since this all started. i was just giving background history. I was fine before september 2014. Ive tried baclofen, tinazidine, flexeril, perhaps another? tried prednisone, as well as some disease modifiers like heavy duty nsaids for arach inflammation(ketorolac...

Ok hank you for the info ''affected''. Did you see post 7 in this thread? I jsut wanted to make sure you saw my als symptoms. thanks. btw why is the stay on one thread part bolded? i have one thread.

Hi gorby :). I jsut feel like the neurologists who gave me that diagnosis just did it because of the spasticity. I don't even present like an hsp patient. the doctor himself said he was diagnosising me with it but only cause he needs an icd code to rpescribe me antispasmodics(which didnt...

also isnt PLS or MS usually clean on an emg dos this sound like that? im sure people here know about those too. thanks

with all due respect i have all the als symptoms so i dont appreciate being dismissed so quickly..... isolated none of these symptoms matter, but together they mean als or mnd. im not saying i have it, but i think saying nnothing i have resembles als is harsh! my symptoms consistent with als-...

i actually was given a diagnosis of hsp by 2 neurologists but that diagnosis does not fit my history at all and 3 other neuros said i dont have it...so that's why i put that as my profile. pt has only made me worse, been to three of them and baclofen and other drugs have done nothing either. im...

Yes i can get ut of bed, but i have to roll out because my back literally does not bend. it is stiff as a board. same with the legs. if i sit i na chair i cant straighten them in front of me. not flaccid

Hi all, I have had quite the decline in health the past 2 years. I would like to give you all a little history of myself. I was always a skinny kid, so when i turned 15 i started getting into bodybuilding and powerlifting. I did that for 11 years until i was forced to quit in september 2014...