Wow. Funny that best wishes don't "feel" like best wishes. I did not second guess my PCP or my Neurologist. The PCP found the crazy reflex and referred me to the neurologist. The neurologist specifically asked about my concern and he said it was valid, he did the EMGs. I merely reported his...
Follow up: I received a post visit summary fronm the neurolgist via the portal that said to return if symptoms persist or worsen.
I then received a message from my PCP stating she "reviewed the report, it was normal, which is reassuring".
I'm not sure what to do next. Is it important to...
Update:
I had the bilateral lower extremity EMG this morning (it was rescheduled from the 3rd due to tech availability for the NCS).
The neurologist didn't say "this looks pretty good" like he did after completing the bilateral upper extremity EMG, he went straight to the "crunching the...
@Wobblyheart I have never attemped to check my own reflexes. I don't think you really can. The only new thing I'm experiencing is occasional chin twitching. I think I'm clenching my jaw when I sleep, because I often wake myself up biting my tongue to the degree that it causes searing pain. I'm...
@Cmh89 As for Pseudobulbar Palsy, I don't recall you mentioning emotional lability? If I understand correctly, Pseudobulbar Palsy is an UMN sign, which would not cause EMG changes, however you have also experienced fasciculations and weakness which are LMN signs, and should be identifiable by...
@Cmh89 I'm still having difficulties. As I mentioned earlier, hoofbeats sometimes signify neither horses nor zebras. I'm hoping for a Mystery Mule that kicks us around a little, then moves on. 😉 I'm trying to remain cautiously optimistic. It's hard.
April
Hello! I just thought I'd answer you here instead of on someone else's profile. :) I am ok. No worse. Trying to stay positive while waiting for the EMG. I have had the twitching before, but the right arm reflex where I thought I was going to punch myself in the face is new and scary. I am...
@Cmh89
So glad to read your recent update! I have been praying for you and your family every night (except for twice when I fell asleep before I got that far) ever since I first read your thread. I will keep praying and watching for updates!
April
@Cmh89 I've been thinking of you today and SO hope you receive reassuring news. The second half of my EMG was rescheduled for May 10th d/t availability of the tech for the NCS.
Nikki J:
Thank you for your very thoughtful response. I appreciate your insights.
I am so sorry your sister was treated that way, by a doctor, no less. And I'm so sorry you had to hear those words.
I will post when I receive the report, and when I have the lower extremity EMG/NCS. Thank...
Follow up:
They split my EMG/NCS into two appointments. The first (bilateral arms) was done today, the second (bilateral legs) will be done May 3rd. I didn't think the NCS had been ordered, but it seems it is always done with the EMG, even if it's not specifically ordered.
I don't have...
Hello Caite-
I was wondering if you had your c-spine MRI and your virtual neuro follow-up? I hope you received good news.
My EMG is April 5th. I vacillate between terror and resignation.
Wishing you Peace,
April