Recent content by Annie1959

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    Tentative ALS diagnosis given

    ENA antibody was positive and anti-ena SS-B was high. I don’t think I have Sjogrens symptoms so I’m not sure about the significance of that.
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    Tentative ALS diagnosis given

    Dr Smiths notes finally showed in My chart and he said he did not think it was ALS! There are still a couple of outstanding tests but I feel a big relief. I think I’m going to be one of the lucky ones and feel blessed. A couple of antibody tests have come back positive so I’ll wait till after...
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    Tentative ALS diagnosis given

    Hi thank you for checking back. My emg was normal. After exam he decided to run several labs and a swallow study in a few days. A few of the labs are back. All have been negative except the ANA. He said we’ll talk after the swallow study is done and labs should all be back by then. Also said...
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    Tentative ALS diagnosis given

    It’s Thursday. Thank you so much ❤️
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    Tentative ALS diagnosis given

    The referral was to Bucelli but I’m seeing Smith. They said Bucelli will be in office that day though and will be looped in
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    Tentative ALS diagnosis given

    Well you made my day Nikki. My appointment is at Wash U so I’m glad to hear you say that. I assume you have experience with Barnes? The dr is in the neuromuscular speciality
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    Tentative ALS diagnosis given

    I already have an appointment for later this week with the neurologist. Since I’m short on time I was hoping you might point me toward a list of questions to be armed with for my visit. Thank you
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    Tentative ALS diagnosis given

    Bugalaw so was the ENT correct?
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    Tentative ALS diagnosis given

    After taking some time and doing some research those were my thoughts too. Thank you for confirming. The doctor came highly recommended by a friend who has some pretty severe problems and I did check his credentials before I saw him. A very nice person and was thorough in his exam. He said he...
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    Tentative ALS diagnosis given

    I got a big surprise last week when I saw an ENT and after examination said he suspects I have ALS. I’ve had problems with choking and swallowing for about a year. Had negative brain and neck MRIs and negative endoscopy earlier ordered by a neurologist . I’ve had a vocal cord disorder for...
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