Recent content by anneinma

My dear husband had oxygen as a back up as he also had COPD. Once he started using the B pap all night every night with his head elevated he could breathe better all day without assistance.

Dear Jane, I did find that post and it brought me some peace. It is still one day at a time as I am sure it is with you. https://www.alsforums.com/forum/showthread.php?t=5714&highlight=multiple+deficits&page=2 Hugs to you at this difficult time of year.

Keeker, My prayers are with you and your brother's family. My daughter is 17 and really missing her Dad. This time of year is especially hard. Thinking of all of you.

My dear husband had a problem with Rilutek. He lost all of his taste buds. His neurologist had never heard of this side effect but advised my husband to go off the drug as taste buds were important. My husband went off it and got his taste buds back. I believe that articifial sweeteners are...

My dear husband started slowing down in April 07. I remember we almost missed a flight because he couldn't walk the distance. Gradually he began getting weaker, having breathing problems and lost 40 pounds of mostly muscle. His hands began losing strength. He fell a couple of times. He began...

Oh Jane, My heart is breaking for you. You are so brave. I understand how your dear husband felt as mine died suddenly when he thought he would no longer be able to walk. What a horrible disease. I guess on this Thanksgiving we can be thankful that our beloveds are not suffering.

I am so sorry to hear about your Dad. I understnad the mixed blessing it it to be the primary caretaker. My husband opted to go off Rilutek because he lost his taste buds. Once he was off they came back. I don't think this had any relevance to hospice. My dear husband passed away very suddenly...

Dear Allison, I had a similar situation with my dear husband who passed awy two days after we went to Mexico. I am sure your dear husband gave you and the kids that trip as a gift. My heart goes out to you but you hopefully can find some solace in that he is not suffering. It is such a horrible...

Dear Maggie, I am so sorry for your loss. I also came to this website while my dear husband was ill but did not post until he passed in April. Your husband and soul mate is in a better place and we are here to help you in whatever way we can.

I am so sorry for your situation. When my dear husband began using the B Pap all night some things improved. He used KY jelly to help with the discomfort from the mask. I have said to many on here that I wish I lived closer so I could help. My DH passed away in April. I miss him dreadfully and...

I agree that is a broad statement. My dear husband was perfectly healthy. He began showing symptoms in April 2007, diagnosed in August 2007, passed aways in April 2008 He was 72.

Great sense of humor which keeps us all going. It had to be a man who invented that!Bless you for your outlook and humor.

Debbie, If I can help you in any way let me know. Little things still make me cry. I know my husband was blessed in that he could go peacefully without loss of dignity. I miss him dreadfully but I know he is with us and at peace.

My daughter and I went out to dinner the other night. It is easier going out than sitting at the table where Dad used to be. She opened up and said that her Dad visits her almost every night. He is whole and strong again. This gave me strength. I know he is there and he is now strong again.

Our daughter was 16 when my husband was dix. We waited to tell her until we got a 2nd dix. and ruled out everythine else. She was having a difficult year herself at school and with friends. We tried to keep things as "normal" as possible, ie. family dinners which allowed her to talk to us. When...