Recent content by anitadeanne

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    Progression

    Hello, I have an appointment with the ALS specialist in 2 weeks. I do not have a diagnosis at this time. I saw 2 regular neurologists and they did not see a concern. I asked to be send to the clinic because quite honestly this has been ongoing for 17 months and I have not been taken seriously...
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    Gastroscope Detected Possible NeuroMuscular Condition

    I understand several doctors have seen me. However any of the testing I received was never extensively thorough. I cannot help but notice physical changes happening. I am not trying to be disrespectful. Today I went to see a neurological physiotherapist who only deals with neurological...
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    Gastroscope Detected Possible NeuroMuscular Condition

    My legs tremble any time I lift them slightly off the group or when I put weight on my hands like cooking, cleaning etc... My balance is off. Twitching like crazy. Have a dent on the side of my leg where I started twitching 14 months ago and still twitches now. My right calf will not grow muscle...
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    Gastroscope Detected Possible NeuroMuscular Condition

    I also forgot to mention one side of my face looks droopy in pictures but not in person. My smile is uneven. Definitely something scary. I just try and keep telling myself maybe most of this is all in my head. Then when you physically see things change it becomes a concern to me.
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    Gastroscope Detected Possible NeuroMuscular Condition

    Update ... I went to see my family doctor today. He did a far more intensive clinical than the 2 neurologists I seen. Neither of them tested my reflexes and today my family doctor did and I have bilateral hyperreflexia. I have had changes in my mouth where I am to tired to talk and my cheeks...
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    Gastroscope Detected Possible NeuroMuscular Condition

    Thank you. I've definitely been driving myself crazy. Hope I won't have any need to report back to here. Thanks for the reassurance.
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    Gastroscope Detected Possible NeuroMuscular Condition

    I have noticed a new symptoms that is very concerning to me among others. However I just wanted to address this one. The back of my tongue on the right side has flattened. When I push my tongue down on the floor of my mouth there is this large gap between my tongue and the side of my tongue. The...
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    Gastroscope Detected Possible NeuroMuscular Condition

    I hope you are right. ❤
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    Gastroscope Detected Possible NeuroMuscular Condition

    After multiple visits to the ER finally had a barium swallow test done which confirmed my epiglottis is curled sitting at the base of my tongue. I did feel a piece of cartilage back there. They are doing another barium swallow with food. I have an appointment with my neurologist to inform him of...
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    Gastroscope Detected Possible NeuroMuscular Condition

    I have been to ER 3 times in 24 hours. I could feel my epiglottis touching the back of my throat on Friday night. Last night I felt something in the back of my throat. I stuck my finger down there to feel what it was and you can feel a narrowing of my epiglottis and there is a huge piece of flap...
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    Gastroscope Detected Possible NeuroMuscular Condition

    I am so very sorry Nikki that you had to experience it with 6 family members and yourself. I think I am just scared because I went through it all for the last year. I have been tested for so much... MS, Fibro, Arthritis etc... I had a nerve conduction test on my arms and legs however based on...
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    Gastroscope Detected Possible NeuroMuscular Condition

    Not the words I wanted to see on my report today after my Gastroscope.... One year of symptoms. An EMG/ Nerve Conduction Test and a Neurologist that wrote me off... Final Impression: Essentially unremarkable endoscopy suggesting that her symptoms are neuromuscular in nature. I think this...
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    Gastroscope Detected Possible NeuroMuscular Condition

    So I am very scared... It was last year this month I started experiencing neurological symptoms. They only lasted a few days and returned January 5th to be exact. I went to the hospital because my mouth was going off in shocks and my whole body went numb and tingling after I saw my massage...
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