Hello,
I have an appointment with the ALS specialist in 2 weeks. I do not have a diagnosis at this time. I saw 2 regular neurologists and they did not see a concern. I asked to be send to the clinic because quite honestly this has been ongoing for 17 months and I have not been taken seriously...
I understand several doctors have seen me. However any of the testing I received was never extensively thorough. I cannot help but notice physical changes happening. I am not trying to be disrespectful.
Today I went to see a neurological physiotherapist who only deals with neurological...
My legs tremble any time I lift them slightly off the group or when I put weight on my hands like cooking, cleaning etc... My balance is off. Twitching like crazy. Have a dent on the side of my leg where I started twitching 14 months ago and still twitches now. My right calf will not grow muscle...
I also forgot to mention one side of my face looks droopy in pictures but not in person. My smile is uneven. Definitely something scary. I just try and keep telling myself maybe most of this is all in my head. Then when you physically see things change it becomes a concern to me.
Update ...
I went to see my family doctor today. He did a far more intensive clinical than the 2 neurologists I seen. Neither of them tested my reflexes and today my family doctor did and I have bilateral hyperreflexia. I have had changes in my mouth where I am to tired to talk and my cheeks...
I have noticed a new symptoms that is very concerning to me among others. However I just wanted to address this one. The back of my tongue on the right side has flattened. When I push my tongue down on the floor of my mouth there is this large gap between my tongue and the side of my tongue. The...
After multiple visits to the ER finally had a barium swallow test done which confirmed my epiglottis is curled sitting at the base of my tongue. I did feel a piece of cartilage back there. They are doing another barium swallow with food. I have an appointment with my neurologist to inform him of...
I have been to ER 3 times in 24 hours. I could feel my epiglottis touching the back of my throat on Friday night. Last night I felt something in the back of my throat. I stuck my finger down there to feel what it was and you can feel a narrowing of my epiglottis and there is a huge piece of flap...
I am so very sorry Nikki that you had to experience it with 6 family members and yourself. I think I am just scared because I went through it all for the last year. I have been tested for so much... MS, Fibro, Arthritis etc... I had a nerve conduction test on my arms and legs however based on...
Not the words I wanted to see on my report today after my Gastroscope.... One year of symptoms. An EMG/ Nerve Conduction Test and a Neurologist that wrote me off...
Final Impression: Essentially unremarkable endoscopy suggesting that her symptoms are neuromuscular in nature. I think this...
So I am very scared... It was last year this month I started experiencing neurological symptoms. They only lasted a few days and returned January 5th to be exact. I went to the hospital because my mouth was going off in shocks and my whole body went numb and tingling after I saw my massage...