Good news!
Hi Gang!
I walked 260 feet last Thursday! Still with my walker - but 260 feet! I am now able to eat and digest food normally again, those supplements worked a lot better than I ever imagined. It is so incredible to actually taste and enjoy food again! I am 80% off all pain...
Hi everyone,
Just came back from physical therapy (legs feel like Jello!), but I walked almost 60 feet! with a walker of course - but still on my own! I have been able to keep food down and still digest it pretty well too. I am just over 50% off the narcotics - but taking predinisone and...
Hello to all, the Sulfasalasine was a bust... so I am back on the Celebrex and taking the injections of Humira. The difference is remarkable, the swelling and inflamation in my tailbone and spine is so much better and the pain is so much better too. I go back to the cancer center for scans...
New Beginning
What a diffference ten days can make.. they new med mix is actually working! I can stand up without crying and actually lay down in bed without crying! and we have already reduced my pain meds by 50%! The Cancer ctr wants a scan of my abdomen, an EGD and colonoscopy done. But...
Thank you Crystal,
It actually went very well - I honestly believe that they have finally found an answer for me - but I am trying not to get hopes up too high, but I just can't help it! It is called Ankylosing Spondylitis, he put me on a combination of two meds (prednisone 20mg twice a day...
Thank you to everyone..
I just want to thank all of you for your support and love and prayers and concern... This is my first and only forum I have ever been a part of and feel so blessed and so grateful to have stumbled across such wonderful loving and caring people.. I thank God for all of...
Crossroad..
Thank you Crystal, I hope he is the right doc too.. I meet with another Dr over in Tampa next Thurs to check on the spondylosis thing too.. I just refuse to believe that I might have ALS and just keep praying and searching for something from someone or anyone who can find...
Still Searching
Hi,
I'm sorry if I always sound negative, but it has been a very tough week. I just don't seem to have the drive or strength to keep up this fight when I constantly hit brick walls.. My Dr did refer me to new a doc(a Hematologist) at the Florida Cancer Institute, I met with...
Thank you Irma and Capt Al,
Today has been a rough one, was not able to get out of bed, missed work.. Hopefully tomorrow will bring more strength and less pain. This is actually the first day of work I have ever missed so far w/o an appt or test. I woke in just too much pain. Slept most of...
Thank you Dona, I am very much considering going somewhere else - just do not know where to go.. there is a Moffitt Center in Tampa, FL which is very near to me, but I do not know if they see cases like mine - I think they specialize in cancer - but I will try and look into it. I'm hoping my...
It is odd you have been talking about comp issues - I just tried to post and it failed.. it is probably a good thing - it was too long and too depressing anyway.. just having a really hard emotional day.. just can't stop the tears.. God bless.
Thank you Al and Irma, all I can do is take one day at a time.. I have so much frustration inside me and please forgive me if my post sound angry - but they truly are. ALSA is not able to step in without a DX.. Right now I am just trying to get through today.
Thank you Cindy, right now I'm really on the edge of losing it... If it were not for my Mom and the fact I work for my brother I honestly do not believe I take another day... But I have to trust God and pray that somehow He will use this for his good and I have to try not to be selfish. I'm...
Thank you Crystal, Al & Al.
A little good news, my has been released from the hospital and she is staying with her sister for a little while. She meets with her Dr tomorrow to get news of the testing they did. Crystal, to answer your questions, they did do an emg - it took all of ten minutes...
I wish I had the words, I am very sorry for staying silent for so long... I just had so much hope before going to the Mayo Clinic, and now I have none. The entire experience so just so awful and so not what we expected. They see 2000 new patients everyday, it is a very well oiled machine and...