Recent content by Angela44

Just wanted to let everyone know my mom passed away today. It has been a rough road but all her suffering is now over. Thanks to everyone here for your support.

thanks everyone for your kind words. mom has slipped into a coma-like state. breathing is very difficult to listen too as her lungs are filling with fluid quickly. haldol was started today along with an increase to morphine every hour. this disease is soooo horrible, why does it seem to attack...

mom is progressing so fast. she is now pretty much out of it all the time. she wakes in pain. we are giving her morphine every two hours and sometimes every hour. her breathing is really bad. how much more can she take? i feel helpless, all i can do is keep pumping in the drugs. so sad right now.

My mom is experiencing what dr's and nurses believe is sundowners through the night. She is the sweetest woman during the day, but at night, she is extremely aggitated, her behaviours and mood change and she becomes extremely restless. She did not have any signs of dementia until just recently...

thank you everyone for the replies and words of encouragement. one day at a time.

mom has all of a sudden began to progress so quickly. she sits in her lift chair 24/7. she was diagnosed in july 2010. she was doing amazing until november 2011. all of a sudden things sped up. she now cant use her right hand or arm. left hand and arm are almost useless as well. her speech is...

mom just started bipap lastnight. she seems to have slept pretty good. only up a couple times. we were able to see our neurologist when we went to london and she said mom is progressing quiet quickly now and does not expect to see anymore plateaus. that was a hard thing to hear. we are just...

i just completed this. thanks for the link.

Thanks for the warm wishes Pam. We are all keeping our fingers crossed.

Yesterday mom fell straight back from a standing position. She went back like a log and hit her head hard. We sent her by ambulance to the hospital. Nothing is broken but she has changed so much. She is not able to walk now. She has major muscle cramping on her legs, feet and butt. The only...

because we live in such a small rural area and we have to travel so far they said we have to wait until thursday. our local hospital doesnt do bipap and said they cant do anything. our sleep clinic tells me they are booked so solid they cant give her any other appt. soooo frustrated! she is...

yes, yes, and yes. u have described many of her recent symptoms. headaches, poor colouring, air hunger, confusion in the night, anxiety, periods of apnea. my friend is a resiratory tech and she has come in on 2 different nights to monitor her o2 levels. i am so worried. she looks so...

hi guys, moms o2 levels keep dropping multiple times each night to as low as 81. we cant get in for bipap for another week. she has bulbar als. how bad is this o2 level? i am very worried. she is extremely restless at night and says she feels trapped in her own body. it is so hard to watch as...

this disease is so exhausting on her and our family. she sleeps at almost a 90 degree angle. we have homecare coming in a night so we get some sleep, although it is hard to sleep when she struggles with her breathing. i am always lying awake listening when i need to be sleeping. its very hard to...

Hi again, i am finding this site to be wonderful and i appreciate all the comments. My next question is in regards to air hunger. My mom isexperiencing some air hunger at night. During the day she says herbreathing just feels shallow. Will the bipap fix this or just prolong her symptoms in...