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  • Hi Andy, my name is Anne and I'm from Glasgow :) nice to meet you! I was diagnosed in Sept last year and no need to tell you what a shock it was! i came across some of your posts on a thread on als forums. I was really inspired to read that you have lived with mnd for 37 years and that you have written a book which, might I add have ordered straight away. It's wonderful to hear how well you're doing and It hasn't spread further than your hands and arms! I'm really looking forward to reading your book, take care, Anne
    Just want to reply to all my good friends. I have just celebrated another birthday 10th of February 2013! The disease has slowly progressed in shoulders, otherwise everything is working good. Can't expect much more at 80 years of age? Look from my book: Against the Odds, Living with Motor Neuron Disease. Love ye all – Handless Andy ~
    Good to hear from you. You must what I call a "form of ALS" like Stephen Hawking has a form of ALS and myself. I see people with full blown acute ALS and they progress rapidly to death in 2 yrs. Very thankful mine has stopped progressing for the last 8-10 yrs leaving me a quadriplegic and a lung volume of 47%. What is your present condition and history?
    Hi Andy! I would be interested in finding out more about how the disease progressed in you. I too have lasted a few years with the disease being diagnosed in 2000. But I am able to exercise in a pool and maintain some use of my muscles, but outside of the pool I can't my limbs to work without help. I too cannot type but use Dragon NaturallySpeaking program to dictate my messages. By the volume is half of what it should be but it has not changed in over six years. I would be interested in hearing back from you. Thanks.
    Hi Andy! I'm so happy for you!! I read your post and my heart is lifted to read that you were diagnoses so very long ago and are still with us. Good for you!! I wish you many many more years. God bless you!!!
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