Recent content by AndyDJX

Thanks. I just found out the neuro I saw won't be back in the office until next week. The intern I spoke with called me about taking care of my muscle biopsy, post surgery side effects. They mentioned the test results they saw on my notes, but I don't think that person even realized how...

Who do you see? I actually made a trip to the Mayo Clinic in Minnesota because I haven't had much luck in Boston.

My post count is mostly because I used to spend some time in this part of the forum to help answer questions from people who just had twitching, but I haven't done that in years. I'm sorry to hear about your husband. My EMG only showed fasiculations, so I'm surprised that denervation and...

Nothing yet. I received a call last night from an intern who read me my test results. It was an intern from the office of the surgeon who performed the test, not the neurologist. I called the neuro I saw and am waiting to hear back.

Hello all, I started twitching almost 11 years ago, in November 2006. Since then, I've had problems with exercise intolerance and exertional weakness-- my muscles will shake or become weak after carrying items or shoveling snow, but I can still walk, talk, button my shirts and live my day to...

Thank you for the feedback-- and good to see you Beky; hope you are doing well these days. You're totally right about the "dodgy" neurological conditions. I remember a doctor telling me that I am lucky to not fit neatly into a clear diagnosis, and I try to keep that in mind. And after 7 years of...

7 years with symptoms but no diagnosis? Hello, I find myself back here because I want to know if anyone has heard of ALS-like symptoms that go on for a very long period of time. My first symptom was fasciculations back in the fall of 2006. Soon after, I had exercise intolerance, that would...

Exercise is exactly what causes my symptoms to present themselves. It's not even exercise anymore, just slightly out of the normal exertion. I can walk fine, but I had to hustle to catch an appointment the other day so I walked up the streets really quickly. After that I was unable to walk on my...

Docta. I am also a cancer survivor about the same age as you. I have been twitching for five and a half years, I've had the lump in my throat, I've had plenty of health anxiety, and I get terrible muscle fatigue. I do not have ALS. Listen, both of our bodies went through some s**t. Chemo is...

Hello everyone, I hope my friends here are doing well. I stopped coming here because I don't have an ALS diagnosis. But unfortunately, my problems continue and are still slowly getting worse. My muscle fatigue is pronounced, I have lost control of some of the muscles around my mouth, my muscles...

Hey friends—as some of you know, this summer I decided to become more pro-active in figuring out what’s been causing my ongoing neuro and neuromuscular issues. An ALS specialist told me that it wasn’t ALS, an assessment I very happily agreed with, but I was concerned with the fact that my...

Congratulations Excellent news.

Mazzi, Have your doctors offered any type of explanation for the results of your EMGs?

Dave man, I completely relate. It is a struggle to allow your reason and rationality to dictate your thoughts and feelings. It doesn't happen automatically, that's for sure. And it's always worse when symptoms are either new or getting worse. Today there are two spots on my tongue that are...

No worries at all, we're all just talking here. It's interesting to read about your experiences.