AndyDJX

Andy, I posted a better pic of my hand, it is on the same thread, could you look at it please. I know it isn't ALS, however something is going on with it because it is slowly getting worse, you will be able to notice the muscle shrinking, my other hand is nothing like this one. Thanks
rdmulliinex
email is [email protected]

Try to relax. I dont know your story but the Dr told me the odds of having ALS now (meaning after the EMG was done) is the same for me as it is for him, that being with obvious symptoms.

Andy did you say one of your symptoms is wasting in the foot?

One other quick note. Check out this article http://www.ncbi.nlm.nih.gov/pmc/articles/PMC485997/pdf/jnnpsyc00020-0072.pdf. It is a study on palmaris brevis spasm - something I definitely have, along with the rest of the twitching... Also, have you noticed any cognitive issues? Such as brain fog / forgetfulness / difficulty concentrating? I have had all three, and the are especially noticeable in the morning. I am headed to get a sleep study in the near future.

Hope you are well, Andy. I had the EMG down at MUSC and although they could see twitches, they did not see anything that indicates anything worse than bfs at this point.

I find it interesting that our symptoms are so similar, as I was readying through an old post of yours and my hypothenar muscles do the same thing - bouncing in and out and twitching constantly which can sometimes move my pinky, sometimes not.

Hi Andy,

I had an EMG about a month after all of the twitching started, and it was normal. I am going to have another one within the next month or so as the neuro at MUSC thinks I should have a specialist conduct one. I agree, I probably should not be on this board... obviously these symptoms are really screwing with my head, and it is amazing how much not knowing what is wrong with you (if anything) can hang over you. I am 27 years old and this is the first real health "issue" that I have had. The neuro doc thinks i have something neuromuscular or this is just one of those things you can't explain.

Glad you are doing well. I will keep you posted on those EMG findings. It will definitely be a relief to me if everything is normal outside of these symptoms (twitching, numbness, tingling in feet, and this crazy heat sensation on the side of my face).

Take care,

Brad

Hey Brad--

No resolution or diagnosis, which in many ways I would take as a good thing. As much as it would be nice to know what's going on, I would obviously prefer it to a more insidious diagnosis. Have you had an EMG yet?

The good news is that you probably don't belong on the als forums, and neither do I. ALS is very rare, and the presentation of it through twitching alone, not weakness or atrophy, is even more rare.

It may be BFS, it may be a weird neuropathy, and you/I/we may never know. Keep me posted to let me know how you're doing and I'll do the same!

Best,

Andy

I read your post regarding your pinky and ring finger being asleep or number when you wake up. I have been having muscle twitching all over my body for 5 months now, along with constant twitching in the side of my left hand, and consistently wake up in the middle of the night with my ring and pinky finers asleep / numb, sometimes in both hands and sometimes only in one. Thus far, I have seen two nueros, one that seems to think I have BFS, and another at a university hospital that is stumped. Have you had any resolution, or diagnosis?

Regards,

Brad