Recent content by andy leopold

Thank you for your post as I believe this is the future for those with ALS. Could you post info for the clinic your dad went to with any contact info. I want to establish contact with them for my wife a.s.a.p.!

Hello eveyone. I really could use your help and advice. We live in California and my wife was diagnosed in Jan with ALS. We are presently using COBRA insurance that will expire in Oct. We are applying for Medi-cal and we could use some real help working the system. Our medical team does not...

I most certainly want to apply. Please let me know how and where! Thanks, Andy

Thanks for the info. Could you tell me who I could contact about joining the dex trial?

Hi. My wife and I obviously want to send the e mail..send me the info..Thanks, Andy

from what I can surmise their is a relatively small window of opportunity to participate in most clinical trials. How do put ourselves in position to qualify for other trials outside the element of the hospital and doctors we are currently working with. Are we limited to only our current doctor...

Hello Friends. I have read some what I believe are encouraging thinks about possible benefits of Lithium. My wife just told about early ALS stage and I would hear from anybody who has tried or is taking Lithium to combat this beast . Does anyone have any encouraging stories about possible help...

HI friends..I have been encouraged about what I read about lithium and its benefit possibly for als. I really would love some feedback from anyone with knowledge of any benefits..have you or do you know anyone that is taking it and what their reactions and opinions are about any benefits..Thank...

Hi Deb again! Another question before I go to work. Your thoughts about getting a second or third opinion from a neurologist and if we do, is it acceptable to be affiliated with more than one ALS clinic for upcoming clinical trials. We are presently seeing someone at UCLA, but have found that...

Thanks Deb for that information, we will certainly check that out. My wife has read many of your posts and says your are the hardest worker on the forum so keep the info coming! Any thoughts about many of the possible benefits of lithium? Thanks, Andy

Thanks Kimberly, I did exactly as you said and hope to get as many responses as possible. It's so hard not to be able to do anything to help the situation, but I am determined to find a way! Thanks for your input! Andy

last week my wife was told she is in the early stages of ALS. I really think she is taking the news better than me at the moment,,(shame on me)..Anyway, I have so many things to ask all of you but don't even know where to begin. Our doctor has offered the only drug available which of course is...

We were just informed that my wife is in the early stages of ALS, so I (we) are newbies here and I could really use some initial input to the many questions I have. I will only ask one of many tonight in regards to any information and thoughts you guys have about the drug Rilutek that our Dr...

I am truly excited to find you and this forum. My wife and I were told yesterday she has early stages of ALS. She has been a perfectly healthy athletic woman until now I am brand new to this forum as I guess I have had blinders on for a while. My wife would be a perfect fit for this trial. How...